Spotlight: GermanNetPaeT

GermanNetPaeT is the German Network for Paediatric Trials and was founded in 2018 as the German National Hub (NH), a partner of the European conect4children network (c4c network).

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Patients, Families & the Science of Rare Diseases

On the 28th February, we commemorated Rare Disease day. The majority of rare diseases affect children, with an estimated 70% having a Paediatric onset (source www.eurordis.org). There is a huge, unmet need to develop effective drugs for children with rare diseases. Currently, only 5% of rare diseases have an effective treatment option.

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Spotlight on SwissPedNet

What did the Swiss clinical research landscape look like ten years ago? Research infrastructures in adult medicine were available and funded, and Swiss paediatricians were aiming to include paediatrics into those activities.

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