Multi-Stakeholder Meeting – Perinatal Asphyxia

c4c Multi-Stakeholder Meeting on Perinatal Asphyxia  18-19 September 2023 Ergife Palace Hotel, Rome & Zoom   Call for Expression of Interest conect4children is pleased to announce that the fourth c4c International Multi-Stakeholder Meeting (MSM) will address the topic perinatal asphyxia. The meeting will be a hybrid meeting that will take place on 18 and 19 September…

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International Precision Vaccines Conference

International Precision Vaccines Conference Registration for the 2023 International Precision Vaccines Conference (IPVC) is now open! Hosted by Ospedale Pediatrico Bambino Gesù and the Precision Vaccines Program of Boston Children’s Hospital, the Conference will be held next 05-06 October 2023 in Rome, Italy.  This year’s theme, “Precision Vaccines: Biomarkers of vaccine safety and efficacy in vulnerable populations,”…

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Penta Launches Brighter Future Award

Penta has launched its first Brighter Future Award (BFA). The BFA is an annual global event designed to honour and celebrate the remarkable efforts of individuals and grassroots organisations working tirelessly to improve health outcomes for children and pregnant people living with infectious diseases worldwide. This award has been created by Penta to acknowledge the vital role played by…

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c4c General Assembly

Between 13th-15th June 2023, 165 c4c beneficiaries met in Newcastle, UK for the c4c General Assembly. This meeting has been a great opportunity for colleagues to meet again (or for the first time!) and to collaborate further for the benefit of the c4c network. The focus of this meeting was to provide an update on…

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Solve-RD Project

Within the Solve-RD project, EURORDIS-Rare Diseases Europe, initiated the Community Engagement Task Force (CETF) – a multi-stakeholder community of patients, scientists and clinicians to support the needs of undiagnosed and recently diagnosed patients and leave a legacy of a strengthened undiagnosed community. This task force has created an infographic setting out the patient journey to…

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