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conect4children: making steps to engage children and families in vital medical progress

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NEWS

On behalf of European Rare Disease community,
c4c submits a shared response to the FDA consultation
about a global clinical trials network in rare diseases

On May 29th this year, the FDA opened a consultation to obtain information and comments from patients, patient advocates, the scientific community, health professionals, other regulatory and health authorities in the global community, regulated industry, and the general public regarding practical steps and successful approaches to establish a global rare disease clinical trials network.   c4c convened representatives of the…

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c4c – the WHY and the HOW

We are working to ensure children have the same rights as adults to access high quality, evidence-based medicines and health care services. We are fully committed to increasing high quality paediatric research.

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  • April 2018

    Project launch

    Project launch

    April 30, 2018
  • December 2018

    Train the Trainers course launched

    Train the Trainers course launched

    December 2, 2018
  • April 2019

    Selection of Non-Industry proof of viability studies

    Selection of Non-Industry proof of viability studies

    April 1, 2019
  • April 2019

    19 paediatric National Hubs ready to engage with study teams

    19 paediatric National Hubs ready to engage with study teams

    April 3, 2019
  • April 2019

    Appointment of c4c clinical & methodology experts

    Appointment of c4c clinical & methodology experts

    April 29, 2019
  • October 2019

    GCP training launched

    GCP training launched

    October 11, 2019
  • November 2019

    First strategic feasibility advice meeting

    First strategic feasibility advice meeting

    November 30, 2019
  • December 2019

    PPI course launched

    PPI course launched

    December 2, 2019
  • April 2020

    Trial short course launched

    Trial short course launched

    April 4, 2020