3rd c4c Multistakesholder Meeting
A 3rd c4c Multistakeholder Meeting (MSM) was held on 21 February in Berlin; the topic was medical devices for children with Type 1 diabetes.
DetailsPatients, Families & the Science of Rare Diseases
On the 28th February, we commemorated Rare Disease day. The majority of rare diseases affect children, with an estimated 70% having a Paediatric onset (source www.eurordis.org). There is a huge, unmet need to develop effective drugs for children with rare diseases. Currently, only 5% of rare diseases have an effective treatment option.
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Spotlight on SwissPedNet – Swiss National Hub
What did the Swiss clinical research landscape look like ten years ago? Research infrastructures in adult medicine were available and funded, and Swiss paediatricians were aiming to include paediatrics into those activities.
DetailsCDISC and c4c release Paediatrics User Guide
CDISC and conect4children (c4c) release of Paediatrics User Guide to facilitate better medicines for babies, children and young people
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Spotlight on In4kids – the Irish National Hub
In4kids, the Irish national hub of the c4c network has been going from strength to strength over recent years, helping to bring researchers across the island of Ireland together to improve the quantity and quality of children’s clinical research in Ireland.
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