conect4children is pleased to announce that the fourth c4c International Multi-Stakeholder Meeting (MSM) on perinatal asphyxia was successfully held on 18th and 19th September 2023 in Rome and virtually.
Children and young people have historically been excluded from participating in clinical research to protect them from potential harm. Nowadays, we know that it is essential to perform clinical trials with children because they suffer from diseases that adults do not suffer from and because their metabolism requires the right dose and mechanism of action for new treatments.
Mental health has become less of a taboo topic in recent years and is considered as a part of our overall health. This change is thanks in part to an increase in mental health research and discussion in media. While this has led to great progress in diagnosis and treatment for such disorders in adults, tailored treatments are still lacking for children in this area.
The c4c FAIR Data working group has collaborated with IMI project FAIRPlus to recommend steps for making metadata about paediatric clinical trials more FAIR (Findable, Accessible, Interoperable and Reusable).