Patients, Families & the Science of Rare Diseases

On the 28th February, we commemorated Rare Disease day. The majority of rare diseases affect children, with an estimated 70% having a Paediatric onset (source www.eurordis.org). There is a huge, unmet need to develop effective drugs for children with rare diseases. Currently, only 5% of rare diseases have an effective treatment option.

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Spotlight on SwissPedNet

What did the Swiss clinical research landscape look like ten years ago? Research infrastructures in adult medicine were available and funded, and Swiss paediatricians were aiming to include paediatrics into those activities.

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Spotlight on In4kids – the Irish National Hub

In4kids, the Irish national hub of the c4c network has been going from strength to strength over recent years, helping to bring researchers across the island of Ireland together to improve the quantity and quality of children’s clinical research in Ireland.

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