EnprEMA Working Group

Children and young people have historically been excluded from participating in clinical research to protect them from potential harm. Nowadays, we know that it is essential to perform clinical trials with children because they suffer from diseases that adults do not suffer from and because their metabolism requires the right dose and mechanism of action for new treatments.

Children’s Mental Health

Mental health has become less of a taboo topic in recent years and is considered as a part of our overall health. This change is thanks in part to an increase in mental health research and discussion in media. While this has led to great progress in diagnosis and treatment for such disorders in adults, tailored treatments are still lacking for children in this area.

Multi-Stakeholder Meeting – Perinatal Asphyxia

c4c Multi-Stakeholder Meeting on Perinatal Asphyxia  18-19 September 2023 Ergife Palace Hotel, Rome & Zoom   Call for Expression of Interest conect4children is pleased to announce that the fourth c4c International Multi-Stakeholder Meeting (MSM) will address the topic perinatal asphyxia. The meeting will be a hybrid meeting that will take place on 18 and 19 September…

International Precision Vaccines Conference

International Precision Vaccines Conference Registration for the 2023 International Precision Vaccines Conference (IPVC) is now open! Hosted by Ospedale Pediatrico Bambino Gesù and the Precision Vaccines Program of Boston Children’s Hospital, the Conference will be held next 05-06 October 2023 in Rome, Italy.  This year’s theme, “Precision Vaccines: Biomarkers of vaccine safety and efficacy in vulnerable populations,”…

Penta Launches Brighter Future Award

Penta has launched its first Brighter Future Award (BFA). The BFA is an annual global event designed to honour and celebrate the remarkable efforts of individuals and grassroots organisations working tirelessly to improve health outcomes for children and pregnant people living with infectious diseases worldwide. This award has been created by Penta to acknowledge the vital role played by…

c4c General Assembly

Between 13th-15th June 2023, 165 c4c beneficiaries met in Newcastle, UK for the c4c General Assembly. This meeting has been a great opportunity for colleagues to meet again (or for the first time!) and to collaborate further for the benefit of the c4c network. The focus of this meeting was to provide an update on…

Solve-RD Project

Within the Solve-RD project, EURORDIS-Rare Diseases Europe, initiated the Community Engagement Task Force (CETF) – a multi-stakeholder community of patients, scientists and clinicians to support the needs of undiagnosed and recently diagnosed patients and leave a legacy of a strengthened undiagnosed community. This task force has created an infographic setting out the patient journey to…

c4c team: Sabah Attar

Meet the team behind c4c! We are a diverse group of people from many different backgrounds, but all of us are working towards a common goal: better medicines for children through European clinical trials. Today’s spotlight is on Sabah Attar, from the University of Liverpool.