conect4children Stichting
IMI2 conect4children Consortium announces the establishment of the conect4children Stichting
Spotlight: GermanNetPaeT
GermanNetPaeT is the German Network for Paediatric Trials and was founded in 2018 as the German National Hub (NH), a partner of the European conect4children network (c4c network).
3rd c4c Multistakesholder Meeting
A 3rd c4c Multistakeholder Meeting (MSM) was held on 21 February in Berlin; the topic was medical devices for children with Type 1 diabetes.
Patients, Families & the Science of Rare Diseases
On the 28th February, we commemorated Rare Disease day. The majority of rare diseases affect children, with an estimated 70% having a Paediatric onset (source www.eurordis.org). There is a huge, unmet need to develop effective drugs for children with rare diseases. Currently, only 5% of rare diseases have an effective treatment option.
Spotlight on SwissPedNet
What did the Swiss clinical research landscape look like ten years ago? Research infrastructures in adult medicine were available and funded, and Swiss paediatricians were aiming to include paediatrics into those activities.
CDISC and c4c release Paediatrics User Guide
CDISC and conect4children (c4c) release of Paediatrics User Guide to facilitate better medicines for babies, children and young people
Spotlight on In4kids – the Irish National Hub
In4kids, the Irish national hub of the c4c network has been going from strength to strength over recent years, helping to bring researchers across the island of Ireland together to improve the quantity and quality of children’s clinical research in Ireland.
New c4c paper published!
New c4c paper published – Standardizing Paediatric Clinical Data: The Development of the conect4children (c4c) Cross Cutting Paediatric Data Dictionary
Expert network works towards better drug development for children
IMI project c4c has pioneered an advice process involving diverse experts including patients to aid drug developers when designing paediatric clinical trials.
c4c team: Jaana Kallio
Today’s spotlight is on Jaana Kallio from the Helsinki University Hospital. You will be surprised in how many parallel activities Jaana is involved, from helping researchers with paperwork to preparing the future of c4c!
