National Hubs Eurovision Theme

Eurovision 2024 just announced its new winner! Congratulations to Switzerland for the amazing performance! Just as Eurovision countries are ‘united by music’, so is conect4children united by a mutual goal: better medicines for babies, children and young people through a pan-European clinical trial network. Through a collaboration between 36 academic, 10 industry and around 500 affiliated partners, we are determined to achieve this goal.

New Publication: Disease-specific data standardization

c4c are delighted to announce a new publication about Disease-specific data standardization. Standardization of disease-specific paediatric clinical trial data is a hugely challenging task. c4c brought together representatives from large initiatives, major data standards, well-known data dictionaries, patient registries, and clinical trial repositories with provisions for clinical data, to build a collaborative action plan for…

International Rare Disease Day

Rare Disease Day took place on the 29th February to raise awareness of rare diseases and demonstrate the solidarity amongst this unique global community. The day includes a global ‘Chain of Lights’ to illuminate buildings and landmarks in the rare disease colours. Many c4c beneficiaries took part in rare disease day events.

eYPAGNet

Increasingly researchers are asked by funders and ethics committees to provide a Patient and Public Involvement (PPI) plan and to demonstrate they have considered the perspectives of the patients and families they wish to recruit to their clinical trials and research. The European Young Persons Advisory Group Network (eYPAGnet) can provide support in both the design and delivery of the Patient and Public Involvement Plan for any research involving babies, children and young people.