Between the 19th -20th February, c4c partners brought together a number of representatives from different data infrastructures to align together in a workshop in Amsterdam to discuss how the needs of paediatric patients can be represented in the European Health Data space.
Fundamental steps in the development of the Czech National Hub began more systematically in 2019. Since then, the Hub has been involved in several national paediatric research projects.
One year of the no-cost extension of the c4c project has been approved by IHI (Innovative Health Initiative), so the new end date of the project is 30/04/2025.
Meet the team behind c4c! We are a diverse group of people from many different backgrounds, all working towards a common goal: better medicines for children through European clinical trials. Today’s spotlight is on Ricardo Fernandes, from the University of Lisbon and AIDFM.
Defining how meaningful Patient and Public Involvement (PPI) is realised in practice, (especially where child and young patients are concerned) is limited partly due to the low-level reporting of the processes and outputs of PPI activities in general.
At the end of a year which brought a lot of change and uncertainty to the world around us, we would like to reflect on c4c´s achievements of the past year and to look forward to what lies ahead in the coming months.
We recently collaborated with FAIRPlus, another IMI funded project, as part of our WP5 data harmonization and standardization tasks to look at ways to make metadata collected about clinical trials more FAIR