Meet the team behind c4c! We are a diverse group of people from many different backgrounds, but all of us are working towards a common goal: better medicines for children through European clinical trials. Today’s spotlight is on Sabah Attar, from the University of Liverpool.
GermanNetPaeT is the German Network for Paediatric Trials and was founded in 2018 as the German National Hub (NH), a partner of the European conect4children network (c4c network).
On the 28th February, we commemorated Rare Disease day. The majority of rare diseases affect children, with an estimated 70% having a Paediatric onset (source www.eurordis.org). There is a huge, unmet need to develop effective drugs for children with rare diseases. Currently, only 5% of rare diseases have an effective treatment option.
What did the Swiss clinical research landscape look like ten years ago? Research infrastructures in adult medicine were available and funded, and Swiss paediatricians were aiming to include paediatrics into those activities.
In4kids, the Irish national hub of the c4c network has been going from strength to strength over recent years, helping to bring researchers across the island of Ireland together to improve the quantity and quality of children’s clinical research in Ireland.
New c4c paper published – Standardizing Paediatric Clinical Data: The Development of the conect4children (c4c) Cross Cutting Paediatric Data Dictionary
IMI project c4c has pioneered an advice process involving diverse experts including patients to aid drug developers when designing paediatric clinical trials.