End of year message from the c4c Project Leadership Team
As we wrap up 2024, we reflect not only on the past year but also on the significant achievements of the c4c project throughout its remarkable journey.
The conect4children International Symposium
After months of preparation, the conect4children project held the much-anticipated International Symposium.
Report on Existing Semantic Interoperability
The concept of semantic interoperability is becoming increasingly important in the health and research fields, particularly in areas where data is scarce and precious such as rare and paediatric diseases. As Information Technology plays an ever increasing role in both healthcare and clinical research, it can act as an enabler to more efficient and standardized…
Call for Clinical Paediatric Experts – Join the conect4children (c4c) Network.
conect4children c4c-S (conect4children.eu) and conect4children is a pan-European clinical trial network) is currently seeking clinical paediatric experts to contribute to its mission of supporting the development of new therapies for the paediatric population across Europe.
c4c National Hub Forum
The forum was the main square in ancient Rome. Its historical, religious, and political importance made it the place around which all the city’s life revolved: weddings, games, gladiatorial fights, religious ceremonies and festivals, military parades, political proclamations etc. It was the living centre of the city, like the agora, the political and mercantile meeting place of the Greek cities.
Spotlight: French National Hub
PEDSTART is the French network for paediatric clinical research. Founded in 2018, it has grown from seven paediatric centers to 19, at present.
CDISC Pediatric User Network
In February 2023, CDISC and c4c announced the publication of the CDISC Pediatrics User Guide (PUG), which is freely available on the CDISC website.
The European Health Data Space needs to be relevant for paediatric data to support future medicines development for children – a conect4children viewpoint
In April 2024, Members of the European Parliament (MEPs) approved the creation of the European Health Data Space (EHDS). The EHDS aims to improve citizens’ access to and control over their electronic health data for primary (healthcare) and secondary (clinical research) uses. Anticipating the endorsement of the EHDS Regulaon, c4c held a workshop in February…
c4c International Symposium
c4c will host an international symposium, a two-day event this November on the 13th and 14th in Amsterdam
New Report: Workshop on Engaging with the European Health Data Space: The Paediatric Perspective
Workshop Aims and Objectives: Explore how to increase alignment of conect4children (an IMI2 initiative that was established to overcome the many barriers to the planning and delivery of effective and efficient paediatric clinical trials) with the European Health Data Space and policy making in a European context. Main aims: – To gain a better understanding…