Spotlight on a National Hub: Spain

Back in November 2016, the first meeting for the constitution of RECLIP was held at La Paz Research Institute in Madrid (IdiPAZ). By that time, the network consisted of 12 reference hospitals, the Foundation for the Promotion of Health and Biomedical Research (FISABIO) and 2 research networks RITIP (Translational Research Network in Pediatric Infectious Diseases)…

How patients can be involved in paediatric clinical trials at regulatory level? (Interview with EURORDIS-Rare Diseases Europe)

Maria Cavaller (Patient Engagement Manager) and Gulcin Gumus (Research and Policy Project Manager) are from patient organisation EURORDIS-Rare Diseases Europe, which is a c4c project partner. We talked to them about how patient organizations can take part in the c4c project, the importance of engaging young patients in research and having patients as equal partners…

c4c team presentation post: Rebecca Leary

Meet the team behind c4c! We’re a diverse group of people from many different backgrounds, but all of us are working towards a common goal: better medicines for children through European clinical trials. Today’s spotlight is on Rebecca ‘Becca’ Leary, one of our project managers. “I work at the John Walton Muscular Dystrophy Research Centre…

Ready to be involved in conect4children?

Traditionally children and young people have been excluded from participating in clinical trials or have not had the opportunity to be involved in the design of clinical studies. However, this  doesn’t mean that involving paediatric patients is not feasible and involving patients does have important benefits. It’s time to shift from a drug-centric approach towards…

Spotlight on the Belgium National Hub

From left to right: Laura Persijn, Dr. Sevasti Karamaria, Prof. Dr. Ann Raes, Daphné Christiaens, Dr. Lieve Nuytinck, Dr. Eva Degraeuwe, Prof. Dr. Johan Vande Walle   After three years of hard work, we are proud to present the progression and the situation we position ourselves in today. Before conect4children (c4c), the sites within our…

conect4children wants to hear from you!

The conect4children project (c4c) is working to facilitate clinical trials across Europe to support the development of new drugs and other therapies for the entire paediatric population. In addition to the technical and operational improvements needed to achieve this goal, we also want to raise the general public’s awareness about the importance of paediatric clinical…

Improving clinical paediatric research using lessons learnt from COVID-19

c4c experts have published ‘Improving clinical paediatric research and learning from COVID-19: recommendations by the conect4children expert advice group’ in Pediatric Research.   The COVID-19 pandemic has resulted in some challenges which c4c partners have had to contend with in their clinical trial operations. COVID-19 affected access to patients; laboratories; study materials; and availability of…