Back in November 2016, the first meeting for the constitution of RECLIP was held at La Paz Research Institute in Madrid (IdiPAZ). By that time, the network consisted of 12 reference hospitals, the Foundation for the Promotion of Health and Biomedical Research (FISABIO) and 2 research networks RITIP (Translational Research Network in Pediatric Infectious Diseases)…
Do you know that only about 30% of medicines in Europe and worldwide are authorized for use in paediatrics and that less than 50% of medicines commonly used in children have been properly evaluated in this population? This rate drops to 10% in the vulnerable patient population in neonatal intensive care. The current consensus is…
Maria Cavaller (Patient Engagement Manager) and Gulcin Gumus (Research and Policy Project Manager) are from patient organisation EURORDIS-Rare Diseases Europe, which is a c4c project partner. We talked to them about how patient organizations can take part in the c4c project, the importance of engaging young patients in research and having patients as equal partners…
c4c is a success. During 2021 c4c actions have influenced other organizations and shown why c4c is important. Despite many difficulties, c4c is very effective because of the dedication by everyone who works on c4c. The hard work and dedication are paying off as we follow the c4c vision and mission. The impacts made by…
1 – 2 March 2022 – 4:00PM – 7:30PM CET (both days) – Virtual event Call for Expression of Interest (deadline: 14 January 2022) conect4children is pleased to announce that the second c4c International Multi-Stakeholder Meeting (MSM) will address paediatric Atopic Dermatitis (AD) and will take place VIRTUALLY on 1-2 MARCH 2022. The meeting is…
Meet the team behind c4c! We’re a diverse group of people from many different backgrounds, but all of us are working towards a common goal: better medicines for children through European clinical trials. Today’s spotlight is on Rebecca ‘Becca’ Leary, one of our project managers. “I work at the John Walton Muscular Dystrophy Research Centre…
Traditionally children and young people have been excluded from participating in clinical trials or have not had the opportunity to be involved in the design of clinical studies. However, this doesn’t mean that involving paediatric patients is not feasible and involving patients does have important benefits. It’s time to shift from a drug-centric approach towards…
From left to right: Laura Persijn, Dr. Sevasti Karamaria, Prof. Dr. Ann Raes, Daphné Christiaens, Dr. Lieve Nuytinck, Dr. Eva Degraeuwe, Prof. Dr. Johan Vande Walle After three years of hard work, we are proud to present the progression and the situation we position ourselves in today. Before conect4children (c4c), the sites within our…
The conect4children project (c4c) is working to facilitate clinical trials across Europe to support the development of new drugs and other therapies for the entire paediatric population. In addition to the technical and operational improvements needed to achieve this goal, we also want to raise the general public’s awareness about the importance of paediatric clinical…
c4c experts have published ‘Improving clinical paediatric research and learning from COVID-19: recommendations by the conect4children expert advice group’ in Pediatric Research. The COVID-19 pandemic has resulted in some challenges which c4c partners have had to contend with in their clinical trial operations. COVID-19 affected access to patients; laboratories; study materials; and availability of…
