NorPedMed is the Norway National Hub in c4c, and the secretariat has been strengthened accordingly with additional resources allocated to take care of our obligations within the c4c. NorPedMed was founded in 2013 to link the paediatric Clinical Trial Units (CTUs) at the six university hospitals. The basic infrastructure of these CTUs (e.g., nurses, housing,…
c4c outreach to patient advocates nationally- Webinar for the Dutch EUPATI-NL community VSOP, the Dutch Patient Alliance for Rare and Genetic Diseases, is participating in the c4c cross-cutting team for Patient and Public Involvement (PPI), which is working on implementation of patient and public involvement activities across Europe. VSOP was invited by the EUPATI-NL project…
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