Fair Cookbook
We recently collaborated with FAIRPlus, another IMI funded project, as part of our WP5 data harmonization and standardization tasks to look at ways to make metadata collected about clinical trials more FAIR
c4c Interview
At the c4c General Assembly meeting, we had the opportunity to talk to members of the new c4c legal entity management team
Spotlight: POLPEDNET
The POLPEDNET network was established in 2017 due to initiative of Children’s Memorial Health Institute by representatives of four biggest paediatric hospitals in Poland
c4c International Multi-Stakeholder Meeting
conect4children is pleased to announce that the fourth c4c International Multi-Stakeholder Meeting (MSM) on perinatal asphyxia was successfully held on 18th and 19th September 2023 in Rome and virtually.
EnprEMA Working Group
Children and young people have historically been excluded from participating in clinical research to protect them from potential harm. Nowadays, we know that it is essential to perform clinical trials with children because they suffer from diseases that adults do not suffer from and because their metabolism requires the right dose and mechanism of action for new treatments.
Children’s Mental Health
Mental health has become less of a taboo topic in recent years and is considered as a part of our overall health. This change is thanks in part to an increase in mental health research and discussion in media. While this has led to great progress in diagnosis and treatment for such disorders in adults, tailored treatments are still lacking for children in this area.
Metadata Profiles
The c4c FAIR Data working group has collaborated with IMI project FAIRPlus to recommend steps for making metadata about paediatric clinical trials more FAIR (Findable, Accessible, Interoperable and Reusable).