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TitleDescriptionTargetFormatLanguageSourceTagshf:tax:targethf:tax:formathf:tags
c4c – we want to hear from young people

Are you interested in being involved in an innovative project and contributing to the development of research? Then take a look at our video on why and how you can get involved.

English with subtitles in Dutch, French, German, Italian, Portuguese and Spanish.conect4children, all-agesvideoengagement-in-research participation
Children and clinical studies

A documentary video for parents about enrolling their child in a clinical study

EnglishDigiKnowIt News - Innovation Research and Training, Inc., parents-caregiversvideoengagement-in-research participation
Clinical trials explained for kids

Learn what a clinical trial is, what it is for and in how many phases it is divided

, , , Spanish with subtitles in EnglishHospital Sant Joan de Déu, , 12-15-yo 16-18-yo 9-11-yo parents-caregiversvideoclinical-trials-design-and-safety decision-making participation
Clinical trials in first person

In this video different testimonies explain in first person different moments of their experience while participating in a clinical trial. This information may be useful for patients who have to make the decision to participate in a clinical trial.”

Spanish with subtitles in EnglishHospital Sant Joan de Déuall-agesvideoengagement-in-research
Core Outcome Measures in Effectiveness Trials Initiative (COMET)

In this site you will find materials (in different formats) to understand some important concepts in clinical trials

, EnglishCOMET16-18-yo parents-caregiversvideocore-outcome-measures
EMA – involvement of Children and Young People in regulatory environment

This video explains how children & young people can help to develop medicines for children and young people by sharing their experience, thoughts and ideas with the European Medicines Agency (EMA).

English with subtitles in Dutch, French, German, Italian, Portuguese and Spanish.conect4children, all-agesvideoengagement-in-research participation
Health research: making the right decision for me

Brief animation starring Mia, a character who raises some of the doubts and issues that may arise when a minor is invited to participate in a clinical investigation.

EnglishNational Cancer Institute, , , parents-caregiversvideodouble-blind ethical-aspects-of-a-clinical-trial randomization results-analyse
Hear from parents about their experiences with their children in clinical trials!

In this site you will find videos of parents with children of all ages who have already been in a clinical trial. They share their experiences deciding to be part of a clinical trial and what it was like for them and their children to be part of a clinical trial.

EnglishDigiKnowIt News - Innovation Research and Training, Inc., parents-caregiverswebsiteengagement-in-research participation
How children benefit

Researchers and families discuss the benefits of research

EnglishChildren and Clinical Studies, parents-caregiversvideoengagement-in-research participation
Informed consent document addressed to patients: the assent

This material explains what clinical trials are and give some recommendations on how to write a consent document for children

, , EnglishKids Barcelona12-15-yo 16-18-yo 9-11-yoguidelineparticipation
Learning about clinical trials

Topics & issues that should be explained to a child before being enrolled in a clinical trial

, , , SpanishKids Barcelona (Hospital Sant Joan de Déu), , 12-15-yo 16-18-yo 9-11-yo parents-caregiverscomicdecision-making engagement-in-research participation
Parent guide

This Parent Guide will provide you with an overview of clinical trials designed specifically for children, as well as brief descriptions of the parts of the DigiKnowIt News website.

EnglishDigiKnowIt News - Innovation Research and Training, Inc, parents-caregiversbookletengagement-in-research participation
Public information pack 1: how to get involved in NHS, public health and social care research

This guide answers the main questions people ask when they first get involved in research. It
explains how you can get involved in research, what you can expect and the difference you can
make.

, EnglishNIHR INVOLVE, 16-18-yo parents-caregiversbookletdecision-making engagement-in-research
Public information pack 2: how to get involved in NHS, public health and social care research

This booklet explains how and why the public are involved in research, what they can expect and what difference they make. It also includes stories from people who have been involved for a number of years, as well as stories from researchers and research staff who support involvement.

, EnglishNIHR INVOLVE, 16-18-yo parents-caregiversbookletdecision-making engagement-in-research
Public information pack 3: how to get involved in NHS, public health and social care research

This booklet provides information about some of the different organisations that are involved in research, which may be useful to know about.

, EnglishNIHR INVOLVE, 16-18-yo parents-caregiversbookletdecision-making engagement-in-research
Public information pack 4: how to get involved in NHS, public health and social care research/jargon buster

This booklet is a jargon buster providing a glossary of some of the words used research

, EnglishNIHR INVOLVE, 16-18-yo parents-caregiversbookletdecision-making engagement-in-research
Research versus care

In this video Dr. David Wendler talks about the differences between research and standard medical care.

EnglishChildren and Clinical Studies, all-agesvideoengagement-in-research participation
Spotlights

Site with videos of kids that will tell you all about their own experiences being in clinical trials

EnglishDigiKnowIt News - Innovation Research and Training, Inc., all-ageswebsiteengagement-in-research participation
Testing treatments international: promoting critical thinking about treatment claims

Introduction to the methods, uses and value of fair testing

Arabic, Chinese, German, English, Spanish, Italian, PolishEvans I, Thornton H, Chalmers I and Glasziou P.parents-caregiversebookdecision-making
The chronicles of clinical trials

In this comic, you will play the character of a child asked to participate in clinical trial and you will learn how they work in first person.

EnglishDigiKnowIt News - Innovation Research and Training, Inc., all-agescomicengagement-in-research participation
The health choices book

This site includes different primary schools materials, including the Healthy Choices book, whichs explains how to think carefully about treatments, so you can make better decisions.

English, French, Spanish, Kinyarwanda (Rwanda), Kiswahili (Kenya)Informed Health Choices9-11-yobookdecision-making
The Mystery of the Clinical Trials

A game to understand the importance of the clinical trials and how children can benefit from them

, EnglishDigiKnowIt News - Innovation Research and Training, Inc., all-ages parents-caregiversgameengagement-in-research participation
The Paper Kingdom

This game aims to help learn about clinical studies. It will teach you what they are and why clinical trials are different than usual medical care.

, , English, SpanishChildren and Clinical Studies, 12-15-yo 9-11-yo parents-caregiversgameengagement-in-research participation
Who to talk to

This game will help you to understand that kids have a voice in their clinical trial. You will find out who they can talk to about clinical trials before they start one, while they are in one, and after it ends.

EnglishDigiKnowIt News - Innovation Research and Training, Inc., gameengagement-in-research participation
Why clinical studies are important

In this video pediatrician clinician-researchers, doctors, and nurses talk about the importance of conducting clinical trials for children while addressing common questions that parents and caregivers face.

EnglishDigiKnowIt News - Innovation Research and Training, Inc., parents-caregiversvideoengagement-in-research participation