Patient Involvement

Are you interested in being involved in an innovative project and contributing to the development of research? Then take a look at our video on why and how you can get involved.

A documentary video for parents about enrolling their child in a clinical study

Learn what a clinical trial is, what it is for and in how many phases it is divided

In this video different testimonies explain in first person different moments of their experience while participating in a clinical trial. This information may be useful for patients who have to make the decision to participate in a clinical trial.”

In this site you will find materials (in different formats) to understand some important concepts in clinical trials

This video explains how children & young people can help to develop medicines for children and young people by sharing their experience, thoughts and ideas with the European Medicines Agency (EMA).

Brief animation starring Mia, a character who raises some of the doubts and issues that may arise when a minor is invited to participate in a clinical investigation.

In this site you will find videos of parents with children of all ages who have already been in a clinical trial. They share their experiences deciding to be part of a clinical trial and what it was like for them and their children to be part of a clinical trial.

Researchers and families discuss the benefits of research

This material explains what clinical trials are and give some recommendations on how to write a consent document for children

Topics & issues that should be explained to a child before being enrolled in a clinical trial

This Parent Guide will provide you with an overview of clinical trials designed specifically for children, as well as brief descriptions of the parts of the DigiKnowIt News website.

This guide answers the main questions people ask when they first get involved in research. It
explains how you can get involved in research, what you can expect and the difference you can
make.

This booklet explains how and why the public are involved in research, what they can expect and what difference they make. It also includes stories from people who have been involved for a number of years, as well as stories from researchers and research staff who support involvement.

This booklet provides information about some of the different organisations that are involved in research, which may be useful to know about.

This booklet is a jargon buster providing a glossary of some of the words used research

In this video Dr. David Wendler talks about the differences between research and standard medical care.

Site with videos of kids that will tell you all about their own experiences being in clinical trials

Introduction to the methods, uses and value of fair testing

In this comic, you will play the character of a child asked to participate in clinical trial and you will learn how they work in first person.

This site includes different primary schools materials, including the Healthy Choices book, whichs explains how to think carefully about treatments, so you can make better decisions.

A game to understand the importance of the clinical trials and how children can benefit from them

This game aims to help learn about clinical studies. It will teach you what they are and why clinical trials are different than usual medical care.

This game will help you to understand that kids have a voice in their clinical trial. You will find out who they can talk to about clinical trials before they start one, while they are in one, and after it ends.

In this video pediatrician clinician-researchers, doctors, and nurses talk about the importance of conducting clinical trials for children while addressing common questions that parents and caregivers face.