This is an interactive table: you can navigate it using filters to help refine your search. You can use filters separately or combine them.
The Target Filter allows you to select resources based on the target audience for which they are intended.
Using the format filter you can select the type of resources (i.e. video, eBook, guidelines …), while tags allow you to filter resources according to keywords.
Title | Description | Target | Format | Language | Source | Tags | hf:tax:target | hf:tax:format | hf:tags |
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c4c – we want to hear from young people | Are you interested in being involved in an innovative project and contributing to the development of research? Then take a look at our video on why and how you can get involved. | all ages | video | English with subtitles in Dutch, French, German, Italian, Portuguese and Spanish. | conect4children | engagement in research, participation | all-ages | video | engagement-in-research participation |
Children and clinical studies | A documentary video for parents about enrolling their child in a clinical study | parents/caregivers | video | English | DigiKnowIt News - Innovation Research and Training, Inc. | engagement in research, participation | parents-caregivers | video | engagement-in-research participation |
Clinical trials explained for kids | Learn what a clinical trial is, what it is for and in how many phases it is divided | 12-15 yo, 16-18 yo, 9-11 yo, parents/caregivers | video | Spanish with subtitles in English | Hospital Sant Joan de Déu | clinical trials design and safety, decision-making, participation | 12-15-yo 16-18-yo 9-11-yo parents-caregivers | video | clinical-trials-design-and-safety decision-making participation |
Clinical trials in first person | In this video different testimonies explain in first person different moments of their experience while participating in a clinical trial. This information may be useful for patients who have to make the decision to participate in a clinical trial.” | all ages | video | Spanish with subtitles in English | Hospital Sant Joan de Déu | engagement in research | all-ages | video | engagement-in-research |
Core Outcome Measures in Effectiveness Trials Initiative (COMET) | In this site you will find materials (in different formats) to understand some important concepts in clinical trials | 16-18 yo, parents/caregivers | video | English | COMET | core outcome measures | 16-18-yo parents-caregivers | video | core-outcome-measures |
EMA – involvement of Children and Young People in regulatory environment | This video explains how children & young people can help to develop medicines for children and young people by sharing their experience, thoughts and ideas with the European Medicines Agency (EMA). | all ages | video | English with subtitles in Dutch, French, German, Italian, Portuguese and Spanish. | conect4children | engagement in research, participation | all-ages | video | engagement-in-research participation |
Health research: making the right decision for me | Brief animation starring Mia, a character who raises some of the doubts and issues that may arise when a minor is invited to participate in a clinical investigation. | parents/caregivers | video | English | National Cancer Institute | double blind, ethical aspects of a clinical trial, randomization, results analyse | parents-caregivers | video | double-blind ethical-aspects-of-a-clinical-trial randomization results-analyse |
Hear from parents about their experiences with their children in clinical trials! | In this site you will find videos of parents with children of all ages who have already been in a clinical trial. They share their experiences deciding to be part of a clinical trial and what it was like for them and their children to be part of a clinical trial. | parents/caregivers | website | English | DigiKnowIt News - Innovation Research and Training, Inc. | engagement in research, participation | parents-caregivers | website | engagement-in-research participation |
How children benefit | Researchers and families discuss the benefits of research | parents/caregivers | video | English | Children and Clinical Studies | engagement in research, participation | parents-caregivers | video | engagement-in-research participation |
Informed consent document addressed to patients: the assent | This material explains what clinical trials are and give some recommendations on how to write a consent document for children | 12-15 yo, 16-18 yo, 9-11 yo | guideline | English | Kids Barcelona | participation | 12-15-yo 16-18-yo 9-11-yo | guideline | participation |
Learning about clinical trials | Topics & issues that should be explained to a child before being enrolled in a clinical trial | 12-15 yo, 16-18 yo, 9-11 yo, parents/caregivers | comic | Spanish | Kids Barcelona (Hospital Sant Joan de Déu) | decision-making, engagement in research, participation | 12-15-yo 16-18-yo 9-11-yo parents-caregivers | comic | decision-making engagement-in-research participation |
Parent guide | This Parent Guide will provide you with an overview of clinical trials designed specifically for children, as well as brief descriptions of the parts of the DigiKnowIt News website. | parents/caregivers | booklet | English | DigiKnowIt News - Innovation Research and Training, Inc | engagement in research, participation | parents-caregivers | booklet | engagement-in-research participation |
Public information pack 1: how to get involved in NHS, public health and social care research | This guide answers the main questions people ask when they first get involved in research. It | 16-18 yo, parents/caregivers | booklet | English | NIHR INVOLVE | decision-making, engagement in research | 16-18-yo parents-caregivers | booklet | decision-making engagement-in-research |
Public information pack 2: how to get involved in NHS, public health and social care research | This booklet explains how and why the public are involved in research, what they can expect and what difference they make. It also includes stories from people who have been involved for a number of years, as well as stories from researchers and research staff who support involvement. | 16-18 yo, parents/caregivers | booklet | English | NIHR INVOLVE | decision-making, engagement in research | 16-18-yo parents-caregivers | booklet | decision-making engagement-in-research |
Public information pack 3: how to get involved in NHS, public health and social care research | This booklet provides information about some of the different organisations that are involved in research, which may be useful to know about. | 16-18 yo, parents/caregivers | booklet | English | NIHR INVOLVE | decision-making, engagement in research | 16-18-yo parents-caregivers | booklet | decision-making engagement-in-research |
Public information pack 4: how to get involved in NHS, public health and social care research/jargon buster | This booklet is a jargon buster providing a glossary of some of the words used research | 16-18 yo, parents/caregivers | booklet | English | NIHR INVOLVE | decision-making, engagement in research | 16-18-yo parents-caregivers | booklet | decision-making engagement-in-research |
Research versus care | In this video Dr. David Wendler talks about the differences between research and standard medical care. | all ages | video | English | Children and Clinical Studies | engagement in research, participation | all-ages | video | engagement-in-research participation |
Spotlights | Site with videos of kids that will tell you all about their own experiences being in clinical trials | all ages | website | English | DigiKnowIt News - Innovation Research and Training, Inc. | engagement in research, participation | all-ages | website | engagement-in-research participation |
Testing treatments international: promoting critical thinking about treatment claims | Introduction to the methods, uses and value of fair testing | parents/caregivers | eBook | Arabic, Chinese, German, English, Spanish, Italian, Polish | Evans I, Thornton H, Chalmers I and Glasziou P. | decision-making | parents-caregivers | ebook | decision-making |
The chronicles of clinical trials | In this comic, you will play the character of a child asked to participate in clinical trial and you will learn how they work in first person. | all ages | comic | English | DigiKnowIt News - Innovation Research and Training, Inc. | engagement in research, participation | all-ages | comic | engagement-in-research participation |
The health choices book | This site includes different primary schools materials, including the Healthy Choices book, whichs explains how to think carefully about treatments, so you can make better decisions. | 9-11 yo | book | English, French, Spanish, Kinyarwanda (Rwanda), Kiswahili (Kenya) | Informed Health Choices | decision-making | 9-11-yo | book | decision-making |
The Mystery of the Clinical Trials | A game to understand the importance of the clinical trials and how children can benefit from them | all ages, parents/caregivers | game | English | DigiKnowIt News - Innovation Research and Training, Inc. | engagement in research, participation | all-ages parents-caregivers | game | engagement-in-research participation |
The Paper Kingdom | This game aims to help learn about clinical studies. It will teach you what they are and why clinical trials are different than usual medical care. | 12-15 yo, 9-11 yo, parents/caregivers | game | English, Spanish | Children and Clinical Studies | engagement in research, participation | 12-15-yo 9-11-yo parents-caregivers | game | engagement-in-research participation |
Who to talk to | This game will help you to understand that kids have a voice in their clinical trial. You will find out who they can talk to about clinical trials before they start one, while they are in one, and after it ends. | game | English | DigiKnowIt News - Innovation Research and Training, Inc. | engagement in research, participation | game | engagement-in-research participation | ||
Why clinical studies are important | In this video pediatrician clinician-researchers, doctors, and nurses talk about the importance of conducting clinical trials for children while addressing common questions that parents and caregivers face. | parents/caregivers | video | English | DigiKnowIt News - Innovation Research and Training, Inc. | engagement in research, participation | parents-caregivers | video | engagement-in-research participation |