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Title | Description | Target | Format | Language | Source | Tags | hf:tax:target | hf:tax:format | hf:tags |
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À quoi servent les médicaments ? | Information to help children understand what medicines are for | 6-8 yo, parents/caregivers | website | French | SPARADRAP | acceptance | 6-8-yo parents-caregivers | website | acceptance |
Advice about medicine | Practical and reliable information about the medicine that their child needs and how to give it | 16-18 yo, parents/caregivers | website | English | Medicines for Children | acceptance, administration routes | 16-18-yo parents-caregivers | website | acceptance administration-routes |
Aspirin journey through the body – 3D animation | The journey of a drug through the body: from the moment we take it until it is removed from the body | 16-18 yo, parents/caregivers | video | English | Sheffield Hallam University | administration routes, journey of the drug through the body | 16-18-yo parents-caregivers | video | administration-routes journey-of-the-drug-through-the-body |
Douze façons de prendre un médicament | Information on 12 ways to take a medicine | 6-8 yo, parents/caregivers | website | French | SPARADRAP | acceptance, administration routes | 6-8-yo parents-caregivers | website | acceptance administration-routes |
Drug administration | Different ways (routes) used to give a medicine (drug) | parents/caregivers | eMagazine | English | MSD Manual | administration routes | parents-caregivers | emagazine | administration-routes |
Drugs | Explanations on different topics related with medicines and their effects on the human body | 16-18 yo, parents/caregivers | eMagazine | English (also in other languages) | MSD Manual | administration routes | 16-18-yo parents-caregivers | emagazine | administration-routes |
Guide to swallowing tablets | Practical advice to help your child swallow tablets or capsules | parents/caregivers | guideline | English | Medicines for children | swallowability | parents-caregivers | guideline | swallowability |
How does your body process medicine? | This video explains how a medicine works in general terms in a human body | all ages | video | English with spanish subtitles | Céline Valéry | TED lessons Animation | administration routes, bioavailability | all-ages | video | administration-routes bioavailability |
How to Take Oral Medications Properly | Learn how to take oral medications properly | 16-18 yo, parents/caregivers | eMagazine | English | Very Well Health | accepatance, swallowability | 16-18-yo parents-caregivers | emagazine | accepatance swallowability |
How to use Metered Dose Inhaler (MDI) | Learn how to use metered dose inhaler | 16-18 yo, parents/caregivers | video | English | UseInhalers | administration routes, dose delivery device | 16-18-yo parents-caregivers | video | administration-routes dose-delivery-device |
Inhalers | Didactic videos explaining different conditions and medical procedures, like how to use inhalers | 16-18 yo, parents/caregivers | video | English | MSD Manual | administration routes, dose delivery device | 16-18-yo parents-caregivers | video | administration-routes dose-delivery-device |
Le vaccin | Information to help children understand what vaccines are and what they are needed for | 6-8 yo, parents/caregivers | website | French | SPARADRAP | administration routes, vaccines | 6-8-yo parents-caregivers | website | administration-routes vaccines |
Les médicaments, qu’est-ce que c’est ? | Information to help children understand what medicines are | 6-8 yo, parents/caregivers | website | French | SPARADRAP | acceptance | 6-8-yo parents-caregivers | website | acceptance |
Medicine for kids | Find out why kids' medicines are different from adult ones | 6-8 yo, parents/caregivers | video | English - also available in Italian and Spanish | CVBF-TEDDY | administration routes, bioavailability, pediatric dosage forms, swallowability | 6-8-yo parents-caregivers | video | administration-routes bioavailability pediatric-dosage-forms swallowability |
Modified release tablets | This video explains the difference between different modified-release tablets, which can deliver a drug with a delay after its administration or for a prolonged period of time or to a specific target in the body. | 12-15 yo, 16-18 yo, parents/caregivers | video | English | maxxmint21 | modified release | 12-15-yo 16-18-yo parents-caregivers | video | modified-release |
Module 2 – types of vaccine and adverse reactions | Online course that explains the different types of vaccine and the main routes of administration | 16-18 yo, parents/caregivers | other | English | World Health Organization | vaccines | 16-18-yo parents-caregivers | other | vaccines |
Overview of drug absorption, metabolism, and excretion | Overview of drug absorption, metabolism, and excretion | 16-18 yo, parents/caregivers | video | English | MSD Manual | bioavailability, pharmacokinetics | 16-18-yo parents-caregivers | video | bioavailability pharmacokinetics |
Problems swallowing pills | Tips you can try to make it easier to swallow pills | 12-15 yo, 16-18 yo, parents/caregivers | guideline | English | NHS | accepatance, swallowability | 12-15-yo 16-18-yo parents-caregivers | guideline | accepatance swallowability |
TEDDY videos | Understand why kids' medicines are different from adults ones | 6-8 yo | video | English | CVBF-TEDDY | administration routes, bioavailability, pediatric dosage forms, swallowability | 6-8-yo | video | administration-routes bioavailability pediatric-dosage-forms swallowability |
Title | Description | Target | Format | Language | Source | Tags | hf:tax:target | hf:tax:format | hf:tags |
---|---|---|---|---|---|---|---|---|---|
Can we tell which children with febrile neutropenia have a bad bug or infection? | Explanatory video to understand when children with cancer who develop fever and neutropenia should go to the hospital and how they can help research. | 6-8 yo, 9-11 yo | video | English | Dr. Bob Phillips | blood test, other | 6-8-yo 9-11-yo | video | blood-test other |
Cardio Pulmonary Exercise Test (CPET) for children: what happens? | This video shows what happens when your child needs a Cardiopulmonary Exercise Test (PECP). | all ages | video | English with 10 languages subtitles | WWCIH Charity | Cardio Pulmonary Exercise Test (CPET) | all-ages | video | cardio-pulmonary-exercise-test-cpet |
Donating biospecimens for cancer research: an expert FAQ | In this site you will find information on Biospecimens (samples): what they are, why they are valuable for cancer research and who can donate biospecimens, among other information. | parents/caregivers | guideline | English | Cancer.net | biopsy test, blood test/urinanalysis/stool test | parents-caregivers | guideline | biopsy-test blood-test-urinanalysis-stool-test |
Explaining blood tests to families | This video shows explains what happens when a child needs to get a blood test and it aims to help children and parents prepare for their visit to hospital. | all ages, parents/caregivers | video | English | WWCIH Charity | blood test explanation | all-ages parents-caregivers | video | blood-test-explanation |
How do I prepare my child for a cannula? | This video with pretend hospital play shows how to prepare your child when he/she needs to have a cannula in hospital. | 6-8 yo, parents/caregivers | video | English | WWCIH Charity | cannula insert | 6-8-yo parents-caregivers | video | cannula-insert |
How do I prepare my child for a CT-scan? | How you could talk to your child about having a CT-scan (Computed Tomography) | all ages, parents/caregivers | video | English | WWCIH Charity | CT-scan, Images (CT-scan Rx MRI etc..) | all-ages parents-caregivers | video | ct-scan images-ct-scan-rx-mri-etc |
How do I prepare my child for a general anaesthetic | This video shows how you could play with your child the day or morning before you go to hospital to have a general anaesthetic before their operation. | all ages, parents/caregivers | video | English | WWCIH Charity | general anaesthetic | all-ages parents-caregivers | video | general-anaesthetic |
How do I prepare my child for an EEG? | This video with pretend hospital play shows how you could play with your child the day or morning before you go to hospital for an EEG Electroencephalogram). | 6-8 yo | video | English with 2 subtitles | WWCIH Charity | Images (CT-scan Rx MRI etc..) | 6-8-yo | video | images-ct-scan-rx-mri-etc |
How do I prepare my child for an ultrasound? | This video with pretend hospital play shows how you could play with your child the day or morning before you go to hospital because your child needs to have an Ultrasound. | all ages | video | English with 2 subtitles | WWCIH Charity | Images (CT-scan Rx MRI etc..) | all-ages | video | images-ct-scan-rx-mri-etc |
How do I prepare my child for an X-ray? | This video shows how you can prepare your children when they need to have an X-ray to look at their chest or bones. | 6-8 yo, parents/caregivers | video | English | WWCIH Charity | Images (CT-scan Rx MRI etc..) | 6-8-yo parents-caregivers | video | images-ct-scan-rx-mri-etc |
How do I prepare my child for MRI? | How you could talk to your child about having an MRI scan (Magnetic Resonance Imaging) | all ages, parents/caregivers | video | English | WWCIH Charity | Images (CT-scan Rx MRI etc..) | all-ages parents-caregivers | video | images-ct-scan-rx-mri-etc |
How do I prepare my child with a learning disability for using healthcare services? | This video shows interviews with parents of children with a learning disability. The parents share experiences and different ways they prepare their child for going to hospital, the doctor, the dentist or the optometrist. | parents/caregivers | video | English | WWCIH Charity | learning disability for using healthcare services | parents-caregivers | video | learning-disability-for-using-healthcare-services |
How do my eyes get checked for uveitis? | What to expect when you have an eye test and have your eyes checked for uveitis | all ages, parents/caregivers | video | English | WWCIH Charity | eyes screen for uveitis | all-ages parents-caregivers | video | eyes-screen-for-uveitis |
How does anesthesia works? | This video explains how anesthesia works | 12-15 yo, 16-18 yo, parents/caregivers | video | English with 28 languages subtitles | Steven Zheng | anesthesia | 12-15-yo 16-18-yo parents-caregivers | video | anesthesia |
How X-rays see through your skin | This video explains how X-rays see through your skin | 12-15 yo, 16-18 yo, parents/caregivers | video | English with 25 subtitles | Ge Wang | TED lessons Animation | Images (CT-scan Rx MRI etc..) | 12-15-yo 16-18-yo parents-caregivers | video | images-ct-scan-rx-mri-etc |
My child has a skin prick test to check for allergies | What happens when a child needs to have a prick test, a skin test used to detect allergies | all ages, parents/caregivers | video | English with 8 subtitles | WWCIH Charity | skin prick test for allergies | all-ages parents-caregivers | video | skin-prick-test-for-allergies |
My child has a sweat test to diagnose or rule out cystic fibrosis | This video shows children what happens in a sweat test | all ages, parents/caregivers | video | English with 3 languages subtitles | WWCIH Charity | sweat test for cystic fibrosis | all-ages parents-caregivers | video | sweat-test-for-cystic-fibrosis |
My child is going for a DMSA renal scan (nuclear medicine test) in hospital | This video shows children what happens when doctors check if their kidneys are healthy using a DMSA scanner. This video helps children and parents see the difference between a DMSA and a MAG3 scan. | all ages | video | English with 4 subtitles | WWCIH Charity | DMSA renal scan | all-ages | video | dmsa-renal-scan |
My child is going for a Hearing Test (Visual Reinforced Audiometry) in hospital | In this video two toddlers come to hospital for a hearing test and heir parents ask questions to understand what happens during the test. | parents/caregivers | English | WWCIH Charity | hearing test (Visual Reinforced Audiometry) | parents-caregivers | hearing-test-visual-reinforced-audiometry | ||
My child is going for a polysomnography sleep study | What happens when babies or children have to undergo a polysomnography for a sleep study | all ages, parents/caregivers | video | English with 4 languages subtitles | WWCIH Charity | polysomnography sleep study | all-ages parents-caregivers | video | polysomnography-sleep-study |
My newborn baby has a Hearing Screen in hospital | What happens during the hearing test used to see if a newborn has hearing problems | all ages | video | English with 6 languages subtitles | WWCIH Charity | hearing screening for a newborn | all-ages | video | hearing-screening-for-a-newborn |
My son is anxious about his blood test – preparing in the play hospital | What happens when a child needs to get a blood test | all ages, parents/caregivers | video | English | WWCIH Charity | blood test - play in a hospital | all-ages parents-caregivers | video | blood-test-play-in-a-hospital |
Preparing for my child’s admission to the Cancer Centre at the Royal Hospital for Children Glasgow | What happens when your child is admitted to a Cancer Centre for specialist treatment | all ages, parents/caregivers | English with 2 languages subtitles | WWCIH Charity | other | all-ages parents-caregivers | other | ||
Standard ECG: Texas Children’s Heart Center animation series | Helping children with heart problems understand their diagnosis and potential treatment options | all ages | video | English | Texas Children's Hospital | electrocardiography | all-ages | video | electrocardiography |
The Hopkins Children’s guide to surgery | This book will help parents prepare their child for the experience of going to an hospital for surgery. It allows children to become familiar with what to expect the day of surgery. | 6-8 yo | booklet | English, Arabic, Spanish | Johns Hopkins Children's Center | surgery | 6-8-yo | booklet | surgery |
What happens during an infusion with biologics? | This video shows what happens when getting an infusion with Biologics (a type of medicine). You can watch this video alone or with your child before they need to go to hospital to prepare for this procedure. | 12-15 yo, 16-18 yo, 9-11 yo, parents/caregivers | video | English | WWCIH Charity | infusion with biologics | 12-15-yo 16-18-yo 9-11-yo parents-caregivers | video | infusion-with-biologics |
What happens in a cardio-pulmonary exercise test? | What happens when you have a cardio-pulmonary exercise test to check your heart and lungs in hospital | all ages, parents/caregivers | video | English | WWCIH Charity | Cardio-pulmonary exercise test | all-ages parents-caregivers | video | cardio-pulmonary-exercise-test |
What happens in a hip check for babies and hip dysplasia treatment? | What happens when babies hips get checked and treated for hip dysplasia | parents/caregivers | video | English | WWCIH Charity | hip dysplasia treatment | parents-caregivers | video | hip-dysplasia-treatment |
What happens in a Lung Function Test? | What happens in a Lung Function Test (Breathing Test) | all ages, parents/caregivers | video | English | WWCIH Charity | other | all-ages parents-caregivers | video | other |
What happens in a nerve conduction study? | What happens when your child needs a nerve conduction study to see if their nerves work properly | all ages | video | English with 2 languages subtitles | WWCIH Charity | nerve conduction study | all-ages | video | nerve-conduction-study |
What happens in a videofluoroscopy swallow study? | What happens in a videofluoroscopy swallow study (an X-ray study of the swallow) | parents/caregivers | video | English | WWCIH Charity | Images (CT-scan Rx MRI etc..) | parents-caregivers | video | images-ct-scan-rx-mri-etc |
What happens when my child has a CT scan? | How a CT scan is performed in the hospital | all ages | video | English with 11 languages subtitles | WWCIH Charity | Images (CT-scan Rx MRI etc..) | all-ages | video | images-ct-scan-rx-mri-etc |
What happens when my child has an echo? | What happens when your child needs to have an echo (or echocardiogram) to look at their heart | all ages | video | English with 7 subtitles | WWCIH Charity | echocardiography | all-ages | video | echocardiography |
What happens when my child has an EEG? | Learn what happens if you need to go to the children’s hospital for an EEG (or electroencephalogram) | all ages | video | English with 13 subtitles | WWCIH Charity | electroencephalography | all-ages | video | electroencephalography |
What happens when my child has an X-ray? | What happens when your child needs to have an x-ray to see his chest or bones | all ages, parents/caregivers | video | English with 10 languages subtitles | WWCIH Charity | Images (CT-scan Rx MRI etc..) | all-ages parents-caregivers | video | images-ct-scan-rx-mri-etc |
What happens when my child needs a breathing mask (NIV, CPAP) at night? | See what happens when a child has to start wearing a mask ventilation for the night | all ages | video | English with 7 subtitles | WWCIH Charity | breathing mask (NIV - CPAP) at night | all-ages | video | breathing-mask-niv-cpap-at-night |
What happens when my child needs a joint injection? | This video shows what happens during joint injections using Entonox (a gas that works as pain relief) and helps families prepare before this procedure. | all ages | video | English with 6 languages subtitles | joint injections using entonox (for JIA) | all-ages | video | joint-injections-using-entonox-for-jia | |
What happens when my child needs an injection? | See what happens when a child needs an injection | all ages | video | English | WWCIH Charity | injections | all-ages | video | injections |
Will and Sophie have radiotherapy | This booklet tells the story of a boy and girl having radiotherapy treatment. It will help children understand the different stages of a radiotherapy treatment. | 6-8 yo | booklet | English | Children's Cancer and Leukemia Group | radiotherapy | 6-8-yo | booklet | radiotherapy |
Title | Description | Target | Format | Language | Source | Tags | hf:tax:target | hf:tax:format | hf:tags |
---|---|---|---|---|---|---|---|---|---|
A special visit for Jimmy Bunny | Model of best practice for the preparation of the booklet for children with the indicated range of age | parents/caregivers | booklet | English - available also in Albanian, Dutch, Italian, French, German, Greek | CVBF-TEDDY | approved drugs, comparator, orphan drug | parents-caregivers | booklet | approved-drugs comparator orphan-drug |
About clinicaltrials.ie | Characteristics of a clinical trial and concepts that patients participating in a study should be clear about | parents/caregivers | booklet | English | IPPOSI patient science industry | gives a general overview over clinical trials, interventional study, observational study, phase, pre-clinical research, randomization | parents-caregivers | booklet | gives-a-general-overview-over-clinical-trials interventional-study observational-study phase pre-clinical-research randomization |
About clinicaltrials.ie | Explanation for a 8-year-old child about clinical trials | 6-8 yo | booklet | English | IPPOSI patient science industry | gives a general overview over clinical trials, interventional study, observational study, phase, pre-clinical research, randomization | 6-8-yo | booklet | gives-a-general-overview-over-clinical-trials interventional-study observational-study phase pre-clinical-research randomization |
About clinicaltrials.ie | This booklet has been written to explain to children (aged 8-12) what clinical trials are | 9-11 yo | booklet | English | IPPOSI patient science industry | gives a general overview over clinical trials, interventional study, observational study, phase, pre-clinical research, randomization | 9-11-yo | booklet | gives-a-general-overview-over-clinical-trials interventional-study observational-study phase pre-clinical-research randomization |
About clinicaltrials.ie | This booklet has been written to inform teenagers about clinical trials | 12-15 yo, 16-18 yo | booklet | English | IPPOSI patient science industry | gives a general overview over clinical trials, interventional study, observational study, phase, pre-clinical research, randomization | 12-15-yo 16-18-yo | booklet | gives-a-general-overview-over-clinical-trials interventional-study observational-study phase pre-clinical-research randomization |
ASCO answers: Cancer Clinical Trials | This resource explains what clinical trials are, what are they used for and many other information you need to know if you are going to participate in one. | parents/caregivers | guideline | English | Cancer.net (approved from America Society Clinical Oncology) | clinical trial | parents-caregivers | guideline | clinical-trial |
Children and clinical trials | In this website you will find different materials (video, leaflets, etc) to help you understand the importance of children in clinical studies. | parents/caregivers | website | English | Children and clinical trials | clinical trial | parents-caregivers | website | clinical-trial |
Clinical Research | The story of James Lind, who laid the foundation for modern clinical trials | 6-8 yo, parents/caregivers | video | English (available also in other languages) | ECRAN Project | interventional study, phase, randomization | 6-8-yo parents-caregivers | video | interventional-study phase randomization |
Clinical trials help and resources | Where and how to find information about a clinical trial | parents/caregivers | video | English | National Cancer Institute | double blind, ethical aspects of a clinical trial, randomization, results analyse | parents-caregivers | video | double-blind ethical-aspects-of-a-clinical-trial randomization results-analyse |
Come funziona il nuovo sciroppo? (età 0-6) | Model of best practice for the preparation of the booklet for children with the indicated range of age | parents/caregivers | booklet | Italian - also available in French, Albanian, Arabic, Greek | CVBF-TEDDY | approved drugs, comparator, orphan drug | parents-caregivers | booklet | approved-drugs comparator orphan-drug |
Could you change the future of cystic fibrosis/Research | How are drugs developed? | all ages | video | English | Cystic Fibrosis Trust | development new drug | all-ages | video | development-new-drug |
DEEP informative materials | In this site you will find age-tailored information booklets and assent forms to explain the clinical trial procedures to children | 12-15 yo, 16-18 yo, 6-8 yo, 9-11 yo | booklet | Italian, French, English, Albanian, Arabic, Greek | CVBF-TEDDY | approved drugs, comparator, orphan drug | 12-15-yo 16-18-yo 6-8-yo 9-11-yo | booklet | approved-drugs comparator orphan-drug |
ECRAN Lab | Enter a virtual experimental laboratory and play through the clinical trial phases | 6-8 yo, parents/caregivers | game | English (also available in other language) | ECRAN Project | interventional study | 6-8-yo parents-caregivers | game | interventional-study |
ECRAN Maze | In this game you will have to answer all the questions along the path, just as researchers need to solve uncertainty. Your task is to get through the labyrinth finding the right solution each time. | 6-8 yo, parents/caregivers | game | English (also other language available) | ECRAN Project | protocol | 6-8-yo parents-caregivers | game | protocol |
ECRAN tutorial – interactive | Learn about clinical trials and check your knowledge with this tutorial | 6-8 yo, parents/caregivers | website | English (available in other language) | ECRAN Project | gives a general overview over clinical trials, interventional study, observational study, phase, pre-clinical research, randomization | 6-8-yo parents-caregivers | website | gives-a-general-overview-over-clinical-trials interventional-study observational-study phase pre-clinical-research randomization |
GABA – 1 _ Painaway to the rescue | Model of best practice for the preparation of the booklet for children with the indicated range of age | 6-8 yo, 9-11 yo | booklet | English - also available in Albanian, Dutch, Italian, French, German, Greek | CVBF-TEDDY | approved drugs, comparator, orphan drug | 6-8-yo 9-11-yo | booklet | approved-drugs comparator orphan-drug |
GABA-1_ Free to fly living without pain | Model of best practice for the preparation of the booklet for children with the indicated range of age | 12-15 yo, 16-18 yo | booklet | English - also available in Albanian, Dutch, Italian, French, German, Greek | approved drugs, comparator, orphan drug | 12-15-yo 16-18-yo | booklet | approved-drugs comparator orphan-drug | |
GAPP animated video children | In this video children will find out what a clinical trial is | 6-8 yo, 9-11 yo | video | English - available also in Albanian, Dutch, Italian, French, German, Greek | CVBF-TEDDY | approved drugs, control group, orphan drug | 6-8-yo 9-11-yo | video | approved-drugs control-group orphan-drug |
GAPP animated video teenagers | Learn what clinical trials are and how they are carried out | 12-15 yo, 16-18 yo | video | English - also available in Albanian, Dutch, Italian, French, German, Greek | CVBF-TEDDY | approved drugs, comparator, orphan drug | 12-15-yo 16-18-yo | video | approved-drugs comparator orphan-drug |
Glossary | Glossary of terms commonly used in clinical trials context | parents/caregivers | website | English | CenterWatch | clinical trial, phase | parents-caregivers | website | clinical-trial phase |
Good questions to ask | Researchers and families discuss the importance of asking questions, particularly about the more practical or day-to-day part of being in a research study. | 16-18 yo, parents/caregivers | video | English | Children and Clinical Studies | lifecycle of medicines, phase, randomization | 16-18-yo parents-caregivers | video | lifecycle-of-medicines phase randomization |
Helping you understand clinical trials | What clinical research studies are, why they are important and what happens if you participate | 16-18 yo, parents/caregivers | video | English | Biogen | clinical study, lifecycle of medicines, phases, protocol, randomization | 16-18-yo parents-caregivers | video | clinical-study lifecycle-of-medicines phases protocol randomization |
Helping you understand the placebo effect | This video will explain what the placebo effect is and why you need to consider it during a clinical research study. | 16-18 yo, parents/caregivers | video | English | Biogen | placebo | 16-18-yo parents-caregivers | video | placebo |
How does the new syrup work? (age 0-6) | Model of best practice for the preparation of the booklet for children with the indicated range of age | parents/caregivers | booklet | English | approved drugs, comparator, orphan drug | parents-caregivers | booklet | approved-drugs comparator orphan-drug | |
Launching video about clinical trials | This video will help kids learn about clinical trials | all ages | video | English | DigiKnowIt News | clinical trial | all-ages | video | clinical-trial |
Learning about clinical trials | This booklet includes a very detailed explanation of clinical trials | parents/caregivers | booklet | English | Cure SMA | interventional study, phase, randomization | parents-caregivers | booklet | interventional-study phase randomization |
Mission iron buster (age 11-17) | Model of best practice for the preparation of the booklet for children with the indicated range of age | 12-15 yo, 16-18 yo | booklet | English - also available in Italian, French, Albanian, Arabic, Greek | CVBF-TEDDY | approved drugs, comparator, orphan drug | 12-15-yo 16-18-yo | booklet | approved-drugs comparator orphan-drug |
Mission iron buster (age 6-10) | Model of best practice for the preparation of the booklet for children with the indicated range of age | 6-8 yo, 9-11 yo | booklet | English - also available in Italian, French, Albanian, Arabic, Greek | CVBF-TEDDY | approved drugs, comparator, orphan drug | 6-8-yo 9-11-yo | booklet | approved-drugs comparator orphan-drug |
Phases of Cancer Clinical Trials – an introduction, with Neal Meropol, MD | This video explains how clinical cancer research is done in different phases of clinical trials | parents/caregivers | video | English | Cancer.net (ASCO) | phase | parents-caregivers | video | phase |
Phases of clinical trials | Learn about the different phases of a clinical trial | parents/caregivers | guideline | English | Cancer.net (approved from America Society Clinical Oncology) | phase | parents-caregivers | guideline | phase |
Sail along with James Lind! | General overview of clinical trials explaining in an entertaining 5 minutes film. The film can be watched entirely or divided into 8 segments | 12-15 yo, 16-18 yo, 9-11 yo | video | English, Norwegian and Luxembourgish | ECRAN | phase | 12-15-yo 16-18-yo 9-11-yo | video | phase |
Taking part in clinical trials | This booklet, designed for parents and carers of children and young people with cancer, will help you to understand more about clinical trials and answer some of the questions you may have. | parents/caregivers | booklet | English | Children's Cancer and Leukemia Group | clinical trial, interventional study | parents-caregivers | booklet | clinical-trial interventional-study |
Terms you should know | In this video children define various definitions related to clinical studies. | 12-15 yo, 16-18 yo, parents/caregivers | video | English | Children and Clinical Studies | clinical trial, informed consent, placebo, protocol | 12-15-yo 16-18-yo parents-caregivers | video | clinical-trial informed-consent placebo protocol |
The power of the placebo effect | This video explains what the placebo effect is | 12-15 yo, 16-18 yo, parents/caregivers | video | English with 27 languages subtitles | Emma Bryce | TED lessons Animation | clinical trial, placebo | 12-15-yo 16-18-yo parents-caregivers | video | clinical-trial placebo |
The research team: who’s who | Learn who the members of a research team are and how they interact with study participants | 16-18 yo, parents/caregivers | video | English | Children and Clinical Studies | lifecycle of medicines, phase, randomization | 16-18-yo parents-caregivers | video | lifecycle-of-medicines phase randomization |
What are clinical trials? | Basics of cancer clinical trials including patient safety, phases of clinical trials and the costs | parents/caregivers | audio | English | Cancer.net (coctor-approved patient Information from ASCO) | phases, protocol | parents-caregivers | audio | phases protocol |
Title | Description | Target | Format | Language | Source | Tags | hf:tax:target | hf:tax:format | hf:tags |
---|---|---|---|---|---|---|---|---|---|
Assent form 12-17 years old | Model of best practice for the preparation of the assent form for children with the indicated range of age | 12-15 yo, 16-18 yo | other | English - also available in Albanian, Dutch, Italian, French, German, Greek | CVBF-TEDDY | approved drugs, control group, orphan drug | 12-15-yo 16-18-yo | other | approved-drugs control-group orphan-drug |
Assent form 7-11 years old | Model of best practice for the preparation of the assent form for children with the indicated range of age | 6-8 yo, 9-11 yo | other | English - also available in Albanian, Dutch, Italian, French, German, Greek | CVBF-TEDDY | approved drugs, control group, orphan drug | 6-8-yo 9-11-yo | other | approved-drugs control-group orphan-drug |
Assent form DEEP-2 clinical trial (age 11-17) | Model of best practice for the preparation of the assent form for children with the indicated range of age | 12-15 yo, 16-18 yo | other | English - also available in other languages | CVBF-TEDDY | approved drugs, comparator, orphan drug | 12-15-yo 16-18-yo | other | approved-drugs comparator orphan-drug |
Assent form DEEP-2 clinical trial (age 6-10) | Model of best practice for the preparation of the assent form for children with the indicated range of age | 6-8 yo, 9-11 yo | other | English - available in other languages | CVBF-TEDDY | approved drugs, comparator, orphan drug | 6-8-yo 9-11-yo | other | approved-drugs comparator orphan-drug |
Clinical trials: what is informed consent, with Carolyn Runowicz, MD | What an Informed Consent of a clinical trial is | parents/caregivers | video | English | Cancer.net YouTube Channel | informed consent | parents-caregivers | video | informed-consent |
If not for me: children in clinical studies | If Not for Me is an hour-long documentary which tackles the tough questions many parents ask about pediatric research by talking with families who have been there. | parents/caregivers | video | English, Spanish | Children and Clinical Studies | patients'rights | parents-caregivers | video | patientsrights |
Know your rights | This game will help you to know know what rights children have as clinical trial participants. | all ages | game | English | DigiKnowIt News - Innovation Research and Training, Inc. | Learn about kids' rights and safety when in a clinical trial, patients'rights | all-ages | game | learn-about-kids-rights-and-safety-when-in-a-clinical-trial patientsrights |
Should my child join a clinical trial? | In this website parents can find information on clinical trials like what are they needed, how are they done and their possible risk and benefits. | parents/caregivers | website | English, Spanish | healthychildren.org | assent form, risk-benefit | parents-caregivers | website | assent-form risk-benefit |
Title | Description | Target | Format | Language | Source | Tags | hf:tax:target | hf:tax:format | hf:tags |
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Clinical trials and safety with patient Eric Singer, MD, MA | How clinical trials are reviewed for patient safety | parents/caregivers | video | English | Cancer.net YouTube Channel | adverse, long-term safety | parents-caregivers | video | adverse long-term-safety |
Patient safety in clinical trials | Summary about the process of entering in a clinical trial and patients's rights (in the USA) | parents/caregivers | video | English | cancer.gov | safety and protection and right | parents-caregivers | video | safety-and-protection-and-right |
Safety and protections | In this video parents can find information on safety measures in place to protect their children while they are in a study. | parents/caregivers | video | English | Children and Clinical Studies | safety and protection and right | parents-caregivers | video | safety-and-protection-and-right |
Title | Description | Target | Format | Language | Source | Tags | hf:tax:target | hf:tax:format | hf:tags |
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c4c – we want to hear from young people | Are you interested in being involved in an innovative project and contributing to the development of research? Then take a look at our video on why and how you can get involved. | all ages | video | English with subtitles in Dutch, French, German, Italian, Portuguese and Spanish. | conect4children | engagement in research, participation | all-ages | video | engagement-in-research participation |
Children and clinical studies | A documentary video for parents about enrolling their child in a clinical study | parents/caregivers | video | English | DigiKnowIt News - Innovation Research and Training, Inc. | engagement in research, participation | parents-caregivers | video | engagement-in-research participation |
Clinical trials explained for kids | Learn what a clinical trial is, what it is for and in how many phases it is divided | 12-15 yo, 16-18 yo, 9-11 yo, parents/caregivers | video | Spanish with subtitles in English | Hospital Sant Joan de Déu | clinical trials design and safety, decision-making, participation | 12-15-yo 16-18-yo 9-11-yo parents-caregivers | video | clinical-trials-design-and-safety decision-making participation |
Clinical trials in first person | In this video different testimonies explain in first person different moments of their experience while participating in a clinical trial. This information may be useful for patients who have to make the decision to participate in a clinical trial.” | all ages | video | Spanish with subtitles in English | Hospital Sant Joan de Déu | engagement in research | all-ages | video | engagement-in-research |
Core Outcome Measures in Effectiveness Trials Initiative (COMET) | In this site you will find materials (in different formats) to understand some important concepts in clinical trials | 16-18 yo, parents/caregivers | video | English | COMET | core outcome measures | 16-18-yo parents-caregivers | video | core-outcome-measures |
EMA – involvement of Children and Young People in regulatory environment | This video explains how children & young people can help to develop medicines for children and young people by sharing their experience, thoughts and ideas with the European Medicines Agency (EMA). | all ages | video | English with subtitles in Dutch, French, German, Italian, Portuguese and Spanish. | conect4children | engagement in research, participation | all-ages | video | engagement-in-research participation |
Health research: making the right decision for me | Brief animation starring Mia, a character who raises some of the doubts and issues that may arise when a minor is invited to participate in a clinical investigation. | parents/caregivers | video | English | National Cancer Institute | double blind, ethical aspects of a clinical trial, randomization, results analyse | parents-caregivers | video | double-blind ethical-aspects-of-a-clinical-trial randomization results-analyse |
Hear from parents about their experiences with their children in clinical trials! | In this site you will find videos of parents with children of all ages who have already been in a clinical trial. They share their experiences deciding to be part of a clinical trial and what it was like for them and their children to be part of a clinical trial. | parents/caregivers | website | English | DigiKnowIt News - Innovation Research and Training, Inc. | engagement in research, participation | parents-caregivers | website | engagement-in-research participation |
How children benefit | Researchers and families discuss the benefits of research | parents/caregivers | video | English | Children and Clinical Studies | engagement in research, participation | parents-caregivers | video | engagement-in-research participation |
Informed consent document addressed to patients: the assent | This material explains what clinical trials are and give some recommendations on how to write a consent document for children | 12-15 yo, 16-18 yo, 9-11 yo | guideline | English | Kids Barcelona | participation | 12-15-yo 16-18-yo 9-11-yo | guideline | participation |
Learning about clinical trials | Topics & issues that should be explained to a child before being enrolled in a clinical trial | 12-15 yo, 16-18 yo, 9-11 yo, parents/caregivers | comic | Spanish | Kids Barcelona (Hospital Sant Joan de Déu) | decision-making, engagement in research, participation | 12-15-yo 16-18-yo 9-11-yo parents-caregivers | comic | decision-making engagement-in-research participation |
Parent guide | This Parent Guide will provide you with an overview of clinical trials designed specifically for children, as well as brief descriptions of the parts of the DigiKnowIt News website. | parents/caregivers | booklet | English | DigiKnowIt News - Innovation Research and Training, Inc | engagement in research, participation | parents-caregivers | booklet | engagement-in-research participation |
Public information pack 1: how to get involved in NHS, public health and social care research | This guide answers the main questions people ask when they first get involved in research. It | 16-18 yo, parents/caregivers | booklet | English | NIHR INVOLVE | decision-making, engagement in research | 16-18-yo parents-caregivers | booklet | decision-making engagement-in-research |
Public information pack 2: how to get involved in NHS, public health and social care research | This booklet explains how and why the public are involved in research, what they can expect and what difference they make. It also includes stories from people who have been involved for a number of years, as well as stories from researchers and research staff who support involvement. | 16-18 yo, parents/caregivers | booklet | English | NIHR INVOLVE | decision-making, engagement in research | 16-18-yo parents-caregivers | booklet | decision-making engagement-in-research |
Public information pack 3: how to get involved in NHS, public health and social care research | This booklet provides information about some of the different organisations that are involved in research, which may be useful to know about. | 16-18 yo, parents/caregivers | booklet | English | NIHR INVOLVE | decision-making, engagement in research | 16-18-yo parents-caregivers | booklet | decision-making engagement-in-research |
Public information pack 4: how to get involved in NHS, public health and social care research/jargon buster | This booklet is a jargon buster providing a glossary of some of the words used research | 16-18 yo, parents/caregivers | booklet | English | NIHR INVOLVE | decision-making, engagement in research | 16-18-yo parents-caregivers | booklet | decision-making engagement-in-research |
Research versus care | In this video Dr. David Wendler talks about the differences between research and standard medical care. | all ages | video | English | Children and Clinical Studies | engagement in research, participation | all-ages | video | engagement-in-research participation |
Spotlights | Site with videos of kids that will tell you all about their own experiences being in clinical trials | all ages | website | English | DigiKnowIt News - Innovation Research and Training, Inc. | engagement in research, participation | all-ages | website | engagement-in-research participation |
Testing treatments international: promoting critical thinking about treatment claims | Introduction to the methods, uses and value of fair testing | parents/caregivers | eBook | Arabic, Chinese, German, English, Spanish, Italian, Polish | Evans I, Thornton H, Chalmers I and Glasziou P. | decision-making | parents-caregivers | ebook | decision-making |
The chronicles of clinical trials | In this comic, you will play the character of a child asked to participate in clinical trial and you will learn how they work in first person. | all ages | comic | English | DigiKnowIt News - Innovation Research and Training, Inc. | engagement in research, participation | all-ages | comic | engagement-in-research participation |
The health choices book | This site includes different primary schools materials, including the Healthy Choices book, whichs explains how to think carefully about treatments, so you can make better decisions. | 9-11 yo | book | English, French, Spanish, Kinyarwanda (Rwanda), Kiswahili (Kenya) | Informed Health Choices | decision-making | 9-11-yo | book | decision-making |
The Mystery of the Clinical Trials | A game to understand the importance of the clinical trials and how children can benefit from them | all ages, parents/caregivers | game | English | DigiKnowIt News - Innovation Research and Training, Inc. | engagement in research, participation | all-ages parents-caregivers | game | engagement-in-research participation |
The Paper Kingdom | This game aims to help learn about clinical studies. It will teach you what they are and why clinical trials are different than usual medical care. | 12-15 yo, 9-11 yo, parents/caregivers | game | English, Spanish | Children and Clinical Studies | engagement in research, participation | 12-15-yo 9-11-yo parents-caregivers | game | engagement-in-research participation |
Who to talk to | This game will help you to understand that kids have a voice in their clinical trial. You will find out who they can talk to about clinical trials before they start one, while they are in one, and after it ends. | game | English | DigiKnowIt News - Innovation Research and Training, Inc. | engagement in research, participation | game | engagement-in-research participation | ||
Why clinical studies are important | In this video pediatrician clinician-researchers, doctors, and nurses talk about the importance of conducting clinical trials for children while addressing common questions that parents and caregivers face. | parents/caregivers | video | English | DigiKnowIt News - Innovation Research and Training, Inc. | engagement in research, participation | parents-caregivers | video | engagement-in-research participation |