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MedicinesMedical ProceduresClinical trials designEthical aspectsSafety aspectsRole of patients
TitleDescriptionTargetFormatLanguageSourceTagstarget_hfilterformat_hfiltertags_hfilter
À quoi servent les médicaments ?Information to help children understand what medicines are for, FrenchSPARADRAP6-8-yo parents-caregiverswebsiteacceptance
Advice about medicinePractical and reliable information about the medicine that their child needs and how to give it, EnglishMedicines for Children, 16-18-yo parents-caregiverswebsiteacceptance administration-routes
Aspirin journey through the body – 3D animationThe journey of a drug through the body: from the moment we take it until it is removed from the body, EnglishSheffield Hallam University, 16-18-yo parents-caregiversvideoadministration-routes journey-of-the-drug-through-the-body
Douze façons de prendre un médicamentInformation on 12 ways to take a medicine, FrenchSPARADRAP, 6-8-yo parents-caregiverswebsiteacceptance administration-routes
Drug administrationDifferent ways (routes) used to give a medicine (drug)EnglishMSD Manualparents-caregiversemagazineadministration-routes
DrugsExplanations on different topics related with medicines and their effects on the human body, English (also in other languages)MSD Manual16-18-yo parents-caregiversemagazineadministration-routes
Guide to swallowing tabletsPractical advice to help your child swallow tablets or capsulesEnglishMedicines for childrenparents-caregiversguidelineswallowability
How does your body process medicine?This video explains how a medicine works in general terms in a human bodyEnglish with spanish subtitlesCéline Valéry | TED lessons Animation, all-agesvideoadministration-routes bioavailability
How to Take Oral Medications ProperlyLearn how to take oral medications properly, EnglishVery Well Health, 16-18-yo parents-caregiversemagazineaccepatance swallowability
How to use Metered Dose Inhaler (MDI)Learn how to use metered dose inhaler, EnglishUseInhalers, 16-18-yo parents-caregiversvideoadministration-routes dose-delivery-device
InhalersDidactic videos explaining different conditions and medical procedures, like how to use inhalers, EnglishMSD Manual, 16-18-yo parents-caregiversvideoadministration-routes dose-delivery-device
Le vaccinInformation to help children understand what vaccines are and what they are needed for, FrenchSPARADRAP, 6-8-yo parents-caregiverswebsiteadministration-routes vaccines
Les médicaments, qu’est-ce que c’est ?Information to help children understand what medicines are, FrenchSPARADRAP6-8-yo parents-caregiverswebsiteacceptance
Medicine for kidsFind out why kids' medicines are different from adult ones, English - also available in Italian and SpanishCVBF-TEDDY, , , 6-8-yo parents-caregiversvideoadministration-routes bioavailability pediatric-dosage-forms swallowability
Modified release tabletsThis video explains the difference between different modified-release tablets, which can deliver a drug with a delay after its administration or for a prolonged period of time or to a specific target in the body., , Englishmaxxmint2112-15-yo 16-18-yo parents-caregiversvideomodified-release
Module 2 – types of vaccine and adverse reactionsOnline course that explains the different types of vaccine and the main routes of administration, EnglishWorld Health Organization16-18-yo parents-caregiversothervaccines
Overview of drug absorption, metabolism, and excretionOverview of drug absorption, metabolism, and excretion, EnglishMSD Manual, 16-18-yo parents-caregiversvideobioavailability pharmacokinetics
Problems swallowing pillsTips you can try to make it easier to swallow pills, , EnglishNHS, 12-15-yo 16-18-yo parents-caregiversguidelineaccepatance swallowability
TEDDY videosUnderstand why kids' medicines are different from adults onesEnglishCVBF-TEDDY, , , 6-8-yovideoadministration-routes bioavailability pediatric-dosage-forms swallowability
TitleDescriptionTargetFormatLanguageSourceTagstarget_hfilterformat_hfiltertags_hfilter
Can we tell which children with febrile neutropenia have a bad bug or infection?

Explanatory video to understand when children with cancer who develop fever and neutropenia should go to the hospital and how they can help research.

, EnglishDr. Bob Phillips, 6-8-yo 9-11-yovideoblood-test other
Cardio Pulmonary Exercise Test (CPET) for children: what happens?

This video shows what happens when your child needs a Cardiopulmonary Exercise Test (PECP).

English with 10 languages subtitlesWWCIH Charityall-agesvideocardio-pulmonary-exercise-test-cpet
Donating biospecimens for cancer research: an expert FAQ

In this site you will find information on Biospecimens (samples): what they are, why they are valuable for cancer research and who can donate biospecimens, among other information.

EnglishCancer.net, parents-caregiversguidelinebiopsy-test blood-test-urinanalysis-stool-test
Explaining blood tests to families

This video shows explains what happens when a child needs to get a blood test and it aims to help children and parents prepare for their visit to hospital.

, EnglishWWCIH Charityall-ages parents-caregiversvideoblood-test-explanation
How do I prepare my child for a cannula?

This video with pretend hospital play shows how to prepare your child when he/she needs to have a cannula in hospital.

, EnglishWWCIH Charity6-8-yo parents-caregiversvideocannula-insert
How do I prepare my child for a CT-scan?

How you could talk to your child about having a CT-scan (Computed Tomography)

, EnglishWWCIH Charity, all-ages parents-caregiversvideoct-scan images-ct-scan-rx-mri-etc
How do I prepare my child for a general anaesthetic

This video shows how you could play with your child the day or morning before you go to hospital to have a general anaesthetic before their operation.

, EnglishWWCIH Charityall-ages parents-caregiversvideogeneral-anaesthetic
How do I prepare my child for an EEG?

This video with pretend hospital play shows how you could play with your child the day or morning before you go to hospital for an EEG Electroencephalogram).

English with 2 subtitlesWWCIH Charity6-8-yovideoimages-ct-scan-rx-mri-etc
How do I prepare my child for an ultrasound?

This video with pretend hospital play shows how you could play with your child the day or morning before you go to hospital because your child needs to have an Ultrasound.

English with 2 subtitlesWWCIH Charityall-agesvideoimages-ct-scan-rx-mri-etc
How do I prepare my child for an X-ray?

This video shows how you can prepare your children when they need to have an X-ray to look at their chest or bones.

, EnglishWWCIH Charity6-8-yo parents-caregiversvideoimages-ct-scan-rx-mri-etc
How do I prepare my child for MRI?

How you could talk to your child about having an MRI scan (Magnetic Resonance Imaging)

, EnglishWWCIH Charityall-ages parents-caregiversvideoimages-ct-scan-rx-mri-etc
How do I prepare my child with a learning disability for using healthcare services?

This video shows interviews with parents of children with a learning disability. The parents share experiences and different ways they prepare their child for going to hospital, the doctor, the dentist or the optometrist.

EnglishWWCIH Charityparents-caregiversvideolearning-disability-for-using-healthcare-services
How do my eyes get checked for uveitis?

What to expect when you have an eye test and have your eyes checked for uveitis

, EnglishWWCIH Charityall-ages parents-caregiversvideoeyes-screen-for-uveitis
How does anesthesia works?

This video explains how anesthesia works

, , English with 28 languages subtitlesSteven Zheng12-15-yo 16-18-yo parents-caregiversvideoanesthesia
How X-rays see through your skin

This video explains how X-rays see through your skin

, , English with 25 subtitlesGe Wang | TED lessons Animation12-15-yo 16-18-yo parents-caregiversvideoimages-ct-scan-rx-mri-etc
My child has a skin prick test to check for allergies

What happens when a child needs to have a prick test, a skin test used to detect allergies

, English with 8 subtitlesWWCIH Charityall-ages parents-caregiversvideoskin-prick-test-for-allergies
My child has a sweat test to diagnose or rule out cystic fibrosis

This video shows children what happens in a sweat test

, English with 3 languages subtitlesWWCIH Charityall-ages parents-caregiversvideosweat-test-for-cystic-fibrosis
My child is going for a DMSA renal scan (nuclear medicine test) in hospital

This video shows children what happens when doctors check if their kidneys are healthy using a DMSA scanner. This video helps children and parents see the difference between a DMSA and a MAG3 scan.

English with 4 subtitlesWWCIH Charityall-agesvideodmsa-renal-scan
My child is going for a Hearing Test (Visual Reinforced Audiometry) in hospital

In this video two toddlers come to hospital for a hearing test and heir parents ask questions to understand what happens during the test.

EnglishWWCIH Charityparents-caregivershearing-test-visual-reinforced-audiometry
My child is going for a polysomnography sleep study

What happens when babies or children have to undergo a polysomnography for a sleep study

, English with 4 languages subtitlesWWCIH Charityall-ages parents-caregiversvideopolysomnography-sleep-study
My newborn baby has a Hearing Screen in hospital

What happens during the hearing test used to see if a newborn has hearing problems

English with 6 languages subtitlesWWCIH Charityall-agesvideohearing-screening-for-a-newborn
My son is anxious about his blood test – preparing in the play hospital

What happens when a child needs to get a blood test

, EnglishWWCIH Charityall-ages parents-caregiversvideoblood-test-play-in-a-hospital
Preparing for my child’s admission to the Cancer Centre at the Royal Hospital for Children Glasgow

What happens when your child is admitted to a Cancer Centre for specialist treatment

, English with 2 languages subtitlesWWCIH Charityall-ages parents-caregiversother
Standard ECG: Texas Children’s Heart Center animation series

Helping children with heart problems understand their diagnosis and potential treatment options

EnglishTexas Children's Hospitalall-agesvideoelectrocardiography
The Hopkins Children’s guide to surgery

This book will help parents prepare their child for the experience of going to an hospital for surgery. It allows children to become familiar with what to expect the day of surgery.

English, Arabic, SpanishJohns Hopkins Children's Center6-8-yobookletsurgery
What happens during an infusion with biologics?

This video shows what happens when getting an infusion with Biologics (a type of medicine). You can watch this video alone or with your child before they need to go to hospital to prepare for this procedure.

, , , EnglishWWCIH Charity12-15-yo 16-18-yo 9-11-yo parents-caregiversvideoinfusion-with-biologics
What happens in a cardio-pulmonary exercise test?

What happens when you have a cardio-pulmonary exercise test to check your heart and lungs in hospital

, EnglishWWCIH Charityall-ages parents-caregiversvideocardio-pulmonary-exercise-test
What happens in a hip check for babies and hip dysplasia treatment?

What happens when babies hips get checked and treated for hip dysplasia

EnglishWWCIH Charityparents-caregiversvideohip-dysplasia-treatment
What happens in a Lung Function Test?

What happens in a Lung Function Test (Breathing Test)

, EnglishWWCIH Charityall-ages parents-caregiversvideoother
What happens in a nerve conduction study?

What happens when your child needs a nerve conduction study to see if their nerves work properly

English with 2 languages subtitlesWWCIH Charityall-agesvideonerve-conduction-study
What happens in a videofluoroscopy swallow study?

What happens in a videofluoroscopy swallow study (an X-ray study of the swallow)

EnglishWWCIH Charityparents-caregiversvideoimages-ct-scan-rx-mri-etc
What happens when my child has a CT scan?

How a CT scan is performed in the hospital

English with 11 languages subtitlesWWCIH Charityall-agesvideoimages-ct-scan-rx-mri-etc
What happens when my child has an echo?

What happens when your child needs to have an echo (or echocardiogram) to look at their heart

English with 7 subtitlesWWCIH Charityall-agesvideoechocardiography
What happens when my child has an EEG?

Learn what happens if you need to go to the children’s hospital for an EEG (or electroencephalogram)

English with 13 subtitlesWWCIH Charityall-agesvideoelectroencephalography
What happens when my child has an X-ray?

What happens when your child needs to have an x-ray to see his chest or bones

, English with 10 languages subtitlesWWCIH Charityall-ages parents-caregiversvideoimages-ct-scan-rx-mri-etc
What happens when my child needs a breathing mask (NIV, CPAP) at night?

See what happens when a child has to start wearing a mask ventilation for the night

English with 7 subtitlesWWCIH Charityall-agesvideobreathing-mask-niv-cpap-at-night
What happens when my child needs a joint injection?

This video shows what happens during joint injections using Entonox (a gas that works as pain relief) and helps families prepare before this procedure.

English with 6 languages subtitlesall-agesvideojoint-injections-using-entonox-for-jia
What happens when my child needs an injection?

See what happens when a child needs an injection

EnglishWWCIH Charityall-agesvideoinjections
Will and Sophie have radiotherapy

This booklet tells the story of a boy and girl having radiotherapy treatment. It will help children understand the different stages of a radiotherapy treatment.

EnglishChildren's Cancer and Leukemia Group6-8-yobookletradiotherapy
TitleDescriptionTargetFormatLanguageSourceTagstarget_hfilterformat_hfiltertags_hfilter
A special visit for Jimmy Bunny

Model of best practice for the preparation of the booklet for children with the indicated range of age

English - available also in Albanian, Dutch, Italian, French, German, GreekCVBF-TEDDY, , parents-caregiversbookletapproved-drugs comparator orphan-drug
About clinicaltrials.ie

Characteristics of a clinical trial and concepts that patients participating in a study should be clear about

EnglishIPPOSI patient science industry, , , , , parents-caregiversbookletgives-a-general-overview-over-clinical-trials interventional-study observational-study phase pre-clinical-research randomization
About clinicaltrials.ie

Explanation for a 8-year-old child about clinical trials

EnglishIPPOSI patient science industry, , , , , 6-8-yobookletgives-a-general-overview-over-clinical-trials interventional-study observational-study phase pre-clinical-research randomization
About clinicaltrials.ie

This booklet has been written to explain to children (aged 8-12) what clinical trials are

EnglishIPPOSI patient science industry, , , , , 9-11-yobookletgives-a-general-overview-over-clinical-trials interventional-study observational-study phase pre-clinical-research randomization
About clinicaltrials.ie

This booklet has been written to inform teenagers about clinical trials

, EnglishIPPOSI patient science industry, , , , , 12-15-yo 16-18-yobookletgives-a-general-overview-over-clinical-trials interventional-study observational-study phase pre-clinical-research randomization
ASCO answers: Cancer Clinical Trials

This resource explains what clinical trials are, what are they used for and many other information you need to know if you are going to participate in one.

EnglishCancer.net (approved from America Society Clinical Oncology)parents-caregiversguidelineclinical-trial
Children and clinical trials

In this website you will find different materials (video, leaflets, etc) to help you understand the importance of children in clinical studies.

EnglishChildren and clinical trialsparents-caregiverswebsiteclinical-trial
Clinical Research

The story of James Lind, who laid the foundation for modern clinical trials

, English (available also in other languages)ECRAN Project, , 6-8-yo parents-caregiversvideointerventional-study phase randomization
Clinical trials help and resources

Where and how to find information about a clinical trial

EnglishNational Cancer Institute, , , parents-caregiversvideodouble-blind ethical-aspects-of-a-clinical-trial randomization results-analyse
Come funziona il nuovo sciroppo? (età 0-6)

Model of best practice for the preparation of the booklet for children with the indicated range of age

Italian - also available in French, Albanian, Arabic, GreekCVBF-TEDDY, , parents-caregiversbookletapproved-drugs comparator orphan-drug
Could you change the future of cystic fibrosis/Research

How are drugs developed?

EnglishCystic Fibrosis Trustall-agesvideodevelopment-new-drug
DEEP informative materials

In this site you will find age-tailored information booklets and assent forms to explain the clinical trial procedures to children

, , , Italian, French, English, Albanian, Arabic, GreekCVBF-TEDDY, , 12-15-yo 16-18-yo 6-8-yo 9-11-yobookletapproved-drugs comparator orphan-drug
ECRAN Lab

Enter a virtual experimental laboratory and play through the clinical trial phases

, English (also available in other language)ECRAN Project6-8-yo parents-caregiversgameinterventional-study
ECRAN Maze

In this game you will have to answer all the questions along the path, just as researchers need to solve uncertainty. Your task is to get through the labyrinth finding the right solution each time.

, English (also other language available)ECRAN Project6-8-yo parents-caregiversgameprotocol
ECRAN tutorial – interactive

Learn about clinical trials and check your knowledge with this tutorial

, English (available in other language)ECRAN Project, , , , , 6-8-yo parents-caregiverswebsitegives-a-general-overview-over-clinical-trials interventional-study observational-study phase pre-clinical-research randomization
GABA – 1 _ Painaway to the rescue

Model of best practice for the preparation of the booklet for children with the indicated range of age

, English - also available in Albanian, Dutch, Italian, French, German, GreekCVBF-TEDDY, , 6-8-yo 9-11-yobookletapproved-drugs comparator orphan-drug
GABA-1_ Free to fly living without pain

Model of best practice for the preparation of the booklet for children with the indicated range of age

, English - also available in Albanian, Dutch, Italian, French, German, Greek, , 12-15-yo 16-18-yobookletapproved-drugs comparator orphan-drug
GAPP animated video children

In this video children will find out what a clinical trial is

, English - available also in Albanian, Dutch, Italian, French, German, GreekCVBF-TEDDY, , 6-8-yo 9-11-yovideoapproved-drugs control-group orphan-drug
GAPP animated video teenagers

Learn what clinical trials are and how they are carried out

, English - also available in Albanian, Dutch, Italian, French, German, GreekCVBF-TEDDY, , 12-15-yo 16-18-yovideoapproved-drugs comparator orphan-drug
Glossary

Glossary of terms commonly used in clinical trials context

EnglishCenterWatch, parents-caregiverswebsiteclinical-trial phase
Good questions to ask

Researchers and families discuss the importance of asking questions, particularly about the more practical or day-to-day part of being in a research study.

, EnglishChildren and Clinical Studies, , 16-18-yo parents-caregiversvideolifecycle-of-medicines phase randomization
Helping you understand clinical trials

What clinical research studies are, why they are important and what happens if you participate

, EnglishBiogen, , , , 16-18-yo parents-caregiversvideoclinical-study lifecycle-of-medicines phases protocol randomization
Helping you understand the placebo effect

This video will explain what the placebo effect is and why you need to consider it during a clinical research study.

, EnglishBiogen16-18-yo parents-caregiversvideoplacebo
How does the new syrup work? (age 0-6)

Model of best practice for the preparation of the booklet for children with the indicated range of age

English, , parents-caregiversbookletapproved-drugs comparator orphan-drug
Launching video about clinical trials

This video will help kids learn about clinical trials

EnglishDigiKnowIt Newsall-agesvideoclinical-trial
Learning about clinical trials

This booklet includes a very detailed explanation of clinical trials

EnglishCure SMA, , parents-caregiversbookletinterventional-study phase randomization
Mission iron buster (age 11-17)

Model of best practice for the preparation of the booklet for children with the indicated range of age

, English - also available in Italian, French, Albanian, Arabic, GreekCVBF-TEDDY, , 12-15-yo 16-18-yobookletapproved-drugs comparator orphan-drug
Mission iron buster (age 6-10)

Model of best practice for the preparation of the booklet for children with the indicated range of age

, English - also available in Italian, French, Albanian, Arabic, GreekCVBF-TEDDY, , 6-8-yo 9-11-yobookletapproved-drugs comparator orphan-drug
Phases of Cancer Clinical Trials – an introduction, with Neal Meropol, MD

This video explains how clinical cancer research is done in different phases of clinical trials

EnglishCancer.net (ASCO)parents-caregiversvideophase
Phases of clinical trials

Learn about the different phases of a clinical trial

EnglishCancer.net (approved from America Society Clinical Oncology)parents-caregiversguidelinephase
Sail along with James Lind!

General overview of clinical trials explaining in an entertaining 5 minutes film. The film can be watched entirely or divided into 8 segments

, , English, Norwegian and LuxembourgishECRAN12-15-yo 16-18-yo 9-11-yovideophase
Taking part in clinical trials

This booklet, designed for parents and carers of children and young people with cancer, will help you to understand more about clinical trials and answer some of the questions you may have.

EnglishChildren's Cancer and Leukemia Group, parents-caregiversbookletclinical-trial interventional-study
Terms you should know

In this video children define various definitions related to clinical studies.

, , EnglishChildren and Clinical Studies, , , 12-15-yo 16-18-yo parents-caregiversvideoclinical-trial informed-consent placebo protocol
The power of the placebo effect

This video explains what the placebo effect is

, , English with 27 languages subtitlesEmma Bryce | TED lessons Animation, 12-15-yo 16-18-yo parents-caregiversvideoclinical-trial placebo
The research team: who’s who

Learn who the members of a research team are and how they interact with study participants

, EnglishChildren and Clinical Studies, , 16-18-yo parents-caregiversvideolifecycle-of-medicines phase randomization
What are clinical trials?

Basics of cancer clinical trials including patient safety, phases of clinical trials and the costs

EnglishCancer.net (coctor-approved patient Information from ASCO), parents-caregiversaudiophases protocol
TitleDescriptionTargetFormatLanguageSourceTagstarget_hfilterformat_hfiltertags_hfilter
Assent form 12-17 years oldModel of best practice for the preparation of the assent form for children with the indicated range of age, English - also available in Albanian, Dutch, Italian, French, German, GreekCVBF-TEDDY, , 12-15-yo 16-18-yootherapproved-drugs control-group orphan-drug
Assent form 7-11 years oldModel of best practice for the preparation of the assent form for children with the indicated range of age, English - also available in Albanian, Dutch, Italian, French, German, GreekCVBF-TEDDY, , 6-8-yo 9-11-yootherapproved-drugs control-group orphan-drug
Assent form DEEP-2 clinical trial (age 11-17)Model of best practice for the preparation of the assent form for children with the indicated range of age, English - also available in other languagesCVBF-TEDDY, , 12-15-yo 16-18-yootherapproved-drugs comparator orphan-drug
Assent form DEEP-2 clinical trial (age 6-10)Model of best practice for the preparation of the assent form for children with the indicated range of age, English - available in other languagesCVBF-TEDDY, , 6-8-yo 9-11-yootherapproved-drugs comparator orphan-drug
Clinical trials: what is informed consent, with Carolyn Runowicz, MDWhat an Informed Consent of a clinical trial isEnglishCancer.net YouTube Channelparents-caregiversvideoinformed-consent
If not for me: children in clinical studiesIf Not for Me is an hour-long documentary which tackles the tough questions many parents ask about pediatric research by talking with families who have been there.English, SpanishChildren and Clinical Studiesparents-caregiversvideopatientsrights
Know your rightsThis game will help you to know know what rights children have as clinical trial participants.EnglishDigiKnowIt News - Innovation Research and Training, Inc., all-agesgamelearn-about-kids-rights-and-safety-when-in-a-clinical-trial patientsrights
Should my child join a clinical trial?In this website parents can find information on clinical trials like what are they needed, how are they done and their possible risk and benefits.English, Spanishhealthychildren.org, parents-caregiverswebsiteassent-form risk-benefit
TitleDescriptionTargetFormatLanguageSourceTagstarget_hfilterformat_hfiltertags_hfilter
Clinical trials and safety with patient Eric Singer, MD, MAHow clinical trials are reviewed for patient safetyEnglishCancer.net YouTube Channel, parents-caregiversvideoadverse long-term-safety
Patient safety in clinical trialsSummary about the process of entering in a clinical trial and patients's rights (in the USA)Englishcancer.govparents-caregiversvideosafety-and-protection-and-right
Safety and protectionsIn this video parents can find information on safety measures in place to protect their children while they are in a study.EnglishChildren and Clinical Studiesparents-caregiversvideosafety-and-protection-and-right
TitleDescriptionTargetFormatLanguageSourceTagstarget_hfilterformat_hfiltertags_hfilter
c4c – we want to hear from young people

Are you interested in being involved in an innovative project and contributing to the development of research? Then take a look at our video on why and how you can get involved.

English with subtitles in Dutch, French, German, Italian, Portuguese and Spanish.conect4children, all-agesvideoengagement-in-research participation
Children and clinical studies

A documentary video for parents about enrolling their child in a clinical study

EnglishDigiKnowIt News - Innovation Research and Training, Inc., parents-caregiversvideoengagement-in-research participation
Clinical trials explained for kids

Learn what a clinical trial is, what it is for and in how many phases it is divided

, , , Spanish with subtitles in EnglishHospital Sant Joan de Déu, , 12-15-yo 16-18-yo 9-11-yo parents-caregiversvideoclinical-trials-design-and-safety decision-making participation
Clinical trials in first person

In this video different testimonies explain in first person different moments of their experience while participating in a clinical trial. This information may be useful for patients who have to make the decision to participate in a clinical trial.”

Spanish with subtitles in EnglishHospital Sant Joan de Déuall-agesvideoengagement-in-research
Core Outcome Measures in Effectiveness Trials Initiative (COMET)

In this site you will find materials (in different formats) to understand some important concepts in clinical trials

, EnglishCOMET16-18-yo parents-caregiversvideocore-outcome-measures
EMA – involvement of Children and Young People in regulatory environment

This video explains how children & young people can help to develop medicines for children and young people by sharing their experience, thoughts and ideas with the European Medicines Agency (EMA).

English with subtitles in Dutch, French, German, Italian, Portuguese and Spanish.conect4children, all-agesvideoengagement-in-research participation
Health research: making the right decision for me

Brief animation starring Mia, a character who raises some of the doubts and issues that may arise when a minor is invited to participate in a clinical investigation.

EnglishNational Cancer Institute, , , parents-caregiversvideodouble-blind ethical-aspects-of-a-clinical-trial randomization results-analyse
Hear from parents about their experiences with their children in clinical trials!

In this site you will find videos of parents with children of all ages who have already been in a clinical trial. They share their experiences deciding to be part of a clinical trial and what it was like for them and their children to be part of a clinical trial.

EnglishDigiKnowIt News - Innovation Research and Training, Inc., parents-caregiverswebsiteengagement-in-research participation
How children benefit

Researchers and families discuss the benefits of research

EnglishChildren and Clinical Studies, parents-caregiversvideoengagement-in-research participation
Informed consent document addressed to patients: the assent

This material explains what clinical trials are and give some recommendations on how to write a consent document for children

, , EnglishKids Barcelona12-15-yo 16-18-yo 9-11-yoguidelineparticipation
Learning about clinical trials

Topics & issues that should be explained to a child before being enrolled in a clinical trial

, , , SpanishKids Barcelona (Hospital Sant Joan de Déu), , 12-15-yo 16-18-yo 9-11-yo parents-caregiverscomicdecision-making engagement-in-research participation
Parent guide

This Parent Guide will provide you with an overview of clinical trials designed specifically for children, as well as brief descriptions of the parts of the DigiKnowIt News website.

EnglishDigiKnowIt News - Innovation Research and Training, Inc, parents-caregiversbookletengagement-in-research participation
Public information pack 1: how to get involved in NHS, public health and social care research

This guide answers the main questions people ask when they first get involved in research. It
explains how you can get involved in research, what you can expect and the difference you can
make.

, EnglishNIHR INVOLVE, 16-18-yo parents-caregiversbookletdecision-making engagement-in-research
Public information pack 2: how to get involved in NHS, public health and social care research

This booklet explains how and why the public are involved in research, what they can expect and what difference they make. It also includes stories from people who have been involved for a number of years, as well as stories from researchers and research staff who support involvement.

, EnglishNIHR INVOLVE, 16-18-yo parents-caregiversbookletdecision-making engagement-in-research
Public information pack 3: how to get involved in NHS, public health and social care research

This booklet provides information about some of the different organisations that are involved in research, which may be useful to know about.

, EnglishNIHR INVOLVE, 16-18-yo parents-caregiversbookletdecision-making engagement-in-research
Public information pack 4: how to get involved in NHS, public health and social care research/jargon buster

This booklet is a jargon buster providing a glossary of some of the words used research

, EnglishNIHR INVOLVE, 16-18-yo parents-caregiversbookletdecision-making engagement-in-research
Research versus care

In this video Dr. David Wendler talks about the differences between research and standard medical care.

EnglishChildren and Clinical Studies, all-agesvideoengagement-in-research participation
Spotlights

Site with videos of kids that will tell you all about their own experiences being in clinical trials

EnglishDigiKnowIt News - Innovation Research and Training, Inc., all-ageswebsiteengagement-in-research participation
Testing treatments international: promoting critical thinking about treatment claims

Introduction to the methods, uses and value of fair testing

Arabic, Chinese, German, English, Spanish, Italian, PolishEvans I, Thornton H, Chalmers I and Glasziou P.parents-caregiversebookdecision-making
The chronicles of clinical trials

In this comic, you will play the character of a child asked to participate in clinical trial and you will learn how they work in first person.

EnglishDigiKnowIt News - Innovation Research and Training, Inc., all-agescomicengagement-in-research participation
The health choices book

This site includes different primary schools materials, including the Healthy Choices book, whichs explains how to think carefully about treatments, so you can make better decisions.

English, French, Spanish, Kinyarwanda (Rwanda), Kiswahili (Kenya)Informed Health Choices9-11-yobookdecision-making
The Mystery of the Clinical Trials

A game to understand the importance of the clinical trials and how children can benefit from them

, EnglishDigiKnowIt News - Innovation Research and Training, Inc., all-ages parents-caregiversgameengagement-in-research participation
The Paper Kingdom

This game aims to help learn about clinical studies. It will teach you what they are and why clinical trials are different than usual medical care.

, , English, SpanishChildren and Clinical Studies, 12-15-yo 9-11-yo parents-caregiversgameengagement-in-research participation
Who to talk to

This game will help you to understand that kids have a voice in their clinical trial. You will find out who they can talk to about clinical trials before they start one, while they are in one, and after it ends.

EnglishDigiKnowIt News - Innovation Research and Training, Inc., gameengagement-in-research participation
Why clinical studies are important

In this video pediatrician clinician-researchers, doctors, and nurses talk about the importance of conducting clinical trials for children while addressing common questions that parents and caregivers face.

EnglishDigiKnowIt News - Innovation Research and Training, Inc., parents-caregiversvideoengagement-in-research participation