This is an interactive table: you can navigate it using filters to help refine your search. You can use filters separately or combine them.
The Target Filter allows you to select resources based on the target audience for which they are intended.
Using the format filter you can select the type of resources (i.e. video, eBook, guidelines …), while tags allow you to filter resources according to keywords.
| Title | Description | Target | Format | Language | Source | Tags | hf:tax:target | hf:tax:format | hf:tags |
|---|---|---|---|---|---|---|---|---|---|
| A special visit for Jimmy Bunny | Model of best practice for the preparation of the booklet for children with the indicated range of age | parents/caregivers | booklet | English - available also in Albanian, Dutch, Italian, French, German, Greek | CVBF-TEDDY | approved drugs, comparator, orphan drug | parents-caregivers | booklet | approved-drugs comparator orphan-drug |
| About clinicaltrials.ie | Characteristics of a clinical trial and concepts that patients participating in a study should be clear about | parents/caregivers | booklet | English | IPPOSI patient science industry | gives a general overview over clinical trials, interventional study, observational study, phase, pre-clinical research, randomization | parents-caregivers | booklet | gives-a-general-overview-over-clinical-trials interventional-study observational-study phase pre-clinical-research randomization |
| About clinicaltrials.ie | Explanation for a 8-year-old child about clinical trials | 6-8 yo | booklet | English | IPPOSI patient science industry | gives a general overview over clinical trials, interventional study, observational study, phase, pre-clinical research, randomization | 6-8-yo | booklet | gives-a-general-overview-over-clinical-trials interventional-study observational-study phase pre-clinical-research randomization |
| About clinicaltrials.ie | This booklet has been written to explain to children (aged 8-12) what clinical trials are | 9-11 yo | booklet | English | IPPOSI patient science industry | gives a general overview over clinical trials, interventional study, observational study, phase, pre-clinical research, randomization | 9-11-yo | booklet | gives-a-general-overview-over-clinical-trials interventional-study observational-study phase pre-clinical-research randomization |
| About clinicaltrials.ie | This booklet has been written to inform teenagers about clinical trials | 12-15 yo, 16-18 yo | booklet | English | IPPOSI patient science industry | gives a general overview over clinical trials, interventional study, observational study, phase, pre-clinical research, randomization | 12-15-yo 16-18-yo | booklet | gives-a-general-overview-over-clinical-trials interventional-study observational-study phase pre-clinical-research randomization |
| ASCO answers: Cancer Clinical Trials | This resource explains what clinical trials are, what are they used for and many other information you need to know if you are going to participate in one. | parents/caregivers | guideline | English | Cancer.net (approved from America Society Clinical Oncology) | clinical trial | parents-caregivers | guideline | clinical-trial |
| Children and clinical trials | In this website you will find different materials (video, leaflets, etc) to help you understand the importance of children in clinical studies. | parents/caregivers | website | English | Children and clinical trials | clinical trial | parents-caregivers | website | clinical-trial |
| Clinical Research | The story of James Lind, who laid the foundation for modern clinical trials | 6-8 yo, parents/caregivers | video | English (available also in other languages) | ECRAN Project | interventional study, phase, randomization | 6-8-yo parents-caregivers | video | interventional-study phase randomization |
| Clinical trials help and resources | Where and how to find information about a clinical trial | parents/caregivers | video | English | National Cancer Institute | double blind, ethical aspects of a clinical trial, randomization, results analyse | parents-caregivers | video | double-blind ethical-aspects-of-a-clinical-trial randomization results-analyse |
| Come funziona il nuovo sciroppo? (età 0-6) | Model of best practice for the preparation of the booklet for children with the indicated range of age | parents/caregivers | booklet | Italian - also available in French, Albanian, Arabic, Greek | CVBF-TEDDY | approved drugs, comparator, orphan drug | parents-caregivers | booklet | approved-drugs comparator orphan-drug |
| Could you change the future of cystic fibrosis/Research | How are drugs developed? | all ages | video | English | Cystic Fibrosis Trust | development new drug | all-ages | video | development-new-drug |
| DEEP informative materials | In this site you will find age-tailored information booklets and assent forms to explain the clinical trial procedures to children | 12-15 yo, 16-18 yo, 6-8 yo, 9-11 yo | booklet | Italian, French, English, Albanian, Arabic, Greek | CVBF-TEDDY | approved drugs, comparator, orphan drug | 12-15-yo 16-18-yo 6-8-yo 9-11-yo | booklet | approved-drugs comparator orphan-drug |
| ECRAN Lab | Enter a virtual experimental laboratory and play through the clinical trial phases | 6-8 yo, parents/caregivers | game | English (also available in other language) | ECRAN Project | interventional study | 6-8-yo parents-caregivers | game | interventional-study |
| ECRAN Maze | In this game you will have to answer all the questions along the path, just as researchers need to solve uncertainty. Your task is to get through the labyrinth finding the right solution each time. | 6-8 yo, parents/caregivers | game | English (also other language available) | ECRAN Project | protocol | 6-8-yo parents-caregivers | game | protocol |
| ECRAN tutorial – interactive | Learn about clinical trials and check your knowledge with this tutorial | 6-8 yo, parents/caregivers | website | English (available in other language) | ECRAN Project | gives a general overview over clinical trials, interventional study, observational study, phase, pre-clinical research, randomization | 6-8-yo parents-caregivers | website | gives-a-general-overview-over-clinical-trials interventional-study observational-study phase pre-clinical-research randomization |
| GABA – 1 _ Painaway to the rescue | Model of best practice for the preparation of the booklet for children with the indicated range of age | 6-8 yo, 9-11 yo | booklet | English - also available in Albanian, Dutch, Italian, French, German, Greek | CVBF-TEDDY | approved drugs, comparator, orphan drug | 6-8-yo 9-11-yo | booklet | approved-drugs comparator orphan-drug |
| GABA-1_ Free to fly living without pain | Model of best practice for the preparation of the booklet for children with the indicated range of age | 12-15 yo, 16-18 yo | booklet | English - also available in Albanian, Dutch, Italian, French, German, Greek | approved drugs, comparator, orphan drug | 12-15-yo 16-18-yo | booklet | approved-drugs comparator orphan-drug | |
| GAPP animated video children | In this video children will find out what a clinical trial is | 6-8 yo, 9-11 yo | video | English - available also in Albanian, Dutch, Italian, French, German, Greek | CVBF-TEDDY | approved drugs, control group, orphan drug | 6-8-yo 9-11-yo | video | approved-drugs control-group orphan-drug |
| GAPP animated video teenagers | Learn what clinical trials are and how they are carried out | 12-15 yo, 16-18 yo | video | English - also available in Albanian, Dutch, Italian, French, German, Greek | CVBF-TEDDY | approved drugs, comparator, orphan drug | 12-15-yo 16-18-yo | video | approved-drugs comparator orphan-drug |
| Glossary | Glossary of terms commonly used in clinical trials context | parents/caregivers | website | English | CenterWatch | clinical trial, phase | parents-caregivers | website | clinical-trial phase |
| Good questions to ask | Researchers and families discuss the importance of asking questions, particularly about the more practical or day-to-day part of being in a research study. | 16-18 yo, parents/caregivers | video | English | Children and Clinical Studies | lifecycle of medicines, phase, randomization | 16-18-yo parents-caregivers | video | lifecycle-of-medicines phase randomization |
| Helping you understand clinical trials | What clinical research studies are, why they are important and what happens if you participate | 16-18 yo, parents/caregivers | video | English | Biogen | clinical study, lifecycle of medicines, phases, protocol, randomization | 16-18-yo parents-caregivers | video | clinical-study lifecycle-of-medicines phases protocol randomization |
| Helping you understand the placebo effect | This video will explain what the placebo effect is and why you need to consider it during a clinical research study. | 16-18 yo, parents/caregivers | video | English | Biogen | placebo | 16-18-yo parents-caregivers | video | placebo |
| How does the new syrup work? (age 0-6) | Model of best practice for the preparation of the booklet for children with the indicated range of age | parents/caregivers | booklet | English | approved drugs, comparator, orphan drug | parents-caregivers | booklet | approved-drugs comparator orphan-drug | |
| Launching video about clinical trials | This video will help kids learn about clinical trials | all ages | video | English | DigiKnowIt News | clinical trial | all-ages | video | clinical-trial |
| Learning about clinical trials | This booklet includes a very detailed explanation of clinical trials | parents/caregivers | booklet | English | Cure SMA | interventional study, phase, randomization | parents-caregivers | booklet | interventional-study phase randomization |
| Mission iron buster (age 11-17) | Model of best practice for the preparation of the booklet for children with the indicated range of age | 12-15 yo, 16-18 yo | booklet | English - also available in Italian, French, Albanian, Arabic, Greek | CVBF-TEDDY | approved drugs, comparator, orphan drug | 12-15-yo 16-18-yo | booklet | approved-drugs comparator orphan-drug |
| Mission iron buster (age 6-10) | Model of best practice for the preparation of the booklet for children with the indicated range of age | 6-8 yo, 9-11 yo | booklet | English - also available in Italian, French, Albanian, Arabic, Greek | CVBF-TEDDY | approved drugs, comparator, orphan drug | 6-8-yo 9-11-yo | booklet | approved-drugs comparator orphan-drug |
| Phases of Cancer Clinical Trials – an introduction, with Neal Meropol, MD | This video explains how clinical cancer research is done in different phases of clinical trials | parents/caregivers | video | English | Cancer.net (ASCO) | phase | parents-caregivers | video | phase |
| Phases of clinical trials | Learn about the different phases of a clinical trial | parents/caregivers | guideline | English | Cancer.net (approved from America Society Clinical Oncology) | phase | parents-caregivers | guideline | phase |
| Sail along with James Lind! | General overview of clinical trials explaining in an entertaining 5 minutes film. The film can be watched entirely or divided into 8 segments | 12-15 yo, 16-18 yo, 9-11 yo | video | English, Norwegian and Luxembourgish | ECRAN | phase | 12-15-yo 16-18-yo 9-11-yo | video | phase |
| Taking part in clinical trials | This booklet, designed for parents and carers of children and young people with cancer, will help you to understand more about clinical trials and answer some of the questions you may have. | parents/caregivers | booklet | English | Children's Cancer and Leukemia Group | clinical trial, interventional study | parents-caregivers | booklet | clinical-trial interventional-study |
| Terms you should know | In this video children define various definitions related to clinical studies. | 12-15 yo, 16-18 yo, parents/caregivers | video | English | Children and Clinical Studies | clinical trial, informed consent, placebo, protocol | 12-15-yo 16-18-yo parents-caregivers | video | clinical-trial informed-consent placebo protocol |
| The power of the placebo effect | This video explains what the placebo effect is | 12-15 yo, 16-18 yo, parents/caregivers | video | English with 27 languages subtitles | Emma Bryce | TED lessons Animation | clinical trial, placebo | 12-15-yo 16-18-yo parents-caregivers | video | clinical-trial placebo |
| The research team: who’s who | Learn who the members of a research team are and how they interact with study participants | 16-18 yo, parents/caregivers | video | English | Children and Clinical Studies | lifecycle of medicines, phase, randomization | 16-18-yo parents-caregivers | video | lifecycle-of-medicines phase randomization |
| What are clinical trials? | Basics of cancer clinical trials including patient safety, phases of clinical trials and the costs | parents/caregivers | audio | English | Cancer.net (coctor-approved patient Information from ASCO) | phases, protocol | parents-caregivers | audio | phases protocol |
